Hi Bridget
Nice to hear from you,sorry they have not got the pain under control,funny the way some drugs work for one person,but not another,go back to what works,Try to enjoy the day,it is lovely and sunny down here on the coast.
Best Wishers Eve

Hi Gill20
May i just say everyone seems to suffer with bowel problems.You have to make sure you take a laxative on a daily bases otherwise you have a build up,even then you will find yourself needing a toilet very very quickly,after awhile it becomes the norm.part of the course with the medication.
Gill the one in hospital,my husband has been in…[Read more]

Hi Jo and Jean
I have been thinking the same,Min Angelina Bridget Dai even Tom .May be they have taken a holiday,May be no news is good news!!!!!.Enjoying the summer weather while it is still here.
Nice to hear from you Jean,and you Jo.best Wishes Eve

Hi Gill
I have to say as a carer I have mellowed,may be it is my age rather than Slims condition,to me this mm just puts things into perspective,life to short.So i have learnt to count to 10 before I speak.
Slims a different kettle of fish,has never suffered fools,when he comes off dex,it is highlighted a lot more ,not nice i find myself…[Read more]

Hi Everybody

Sarah you seem to be going through the mill at the moment,were will you be going from here,is dex to build Gordon up for next round of drugs?.
Keith you sound if the whole lot is getting you down,but as you say there is always someone worse off than you,its just trying to put everything in perspective,Do we build are hopes up,to…[Read more]

HI Jeapal 23
Thanks for info on insurance,cheapest that I have seen,have been looking for awhile.
Hope to book something when we know results end of July also thinking of trying to make nz to see daughter so insurance is very welcome
it gives you so much to look forward too.
Hope you have a wonderful holiday. eve

Hi Dai

Well we do not need to ask were all that talent comes from:-)you have every right to feel very proud,this is what life is about,doing a good job.
I know the feeling of missing a daughter,one of my daughter,s live in New Zealand only moved out there3 years ago,taking two very young children with her,so journey home is not on the…[Read more]

Hi Sarah,
Just so sorry to here sct failed,i agree with Bridget it is a bstd illness,Slims on a low dose of Dex now and seems to be coping better with it.
I even let him drive now,before every journey was,like a nightmare.
Let us know how you get on. best wishers Eve

Hi Tom
I won,t ask what you do with the cucumber ,the mind boggles!!!:-S
PS is it any thing to do with onward and upwards

Hi Gill

Welcome to this site, I think we have 3 Gills now so do you become gill20?
Sounds if they have caught you early with having mgus.
My husband has mm and is on Myeloma X1 trials he got cdt side on 5 cycle having 6 cycle then see consultant.Just had another bone marrow sample taken yesterday.Thing seem to be going in the right…[Read more]

Hi Peggy
My if you have not got enough on your plate and this has happened you must be devastated.What a start to a birthday.It will get better,I know that it does not seem this way right now,but there are people ahead of you with not just myeloma,but extra problems as well so you are not alone on this journey.

Its my husband with mm,I also…[Read more]

Hi Helen
Good to know your mum feels a lot better. Its very worrying at the start,but your mum will soon get into the routine of things,do keep posting,it might help your mum to post as well,there is light at the end of the tunnel.
There will always be people who can help you,with any questions, so good luck and keep in touch eve

Hi Helen

Sorry you have had to join this site,but you are welcome.
this is what the site is for to ask question,get support,and rant and rave if you wish.so welcome again to the big learning curve.

Ask your Questions on the other sites as,Re starting a discussion is not were people on this site look very often,you will be picked up ,on…[Read more]

Hi Gill

Welcome to the site,Its either you so shocked or it is a relieve that at least you know have a name to your illness,sorry you have to join us.
Ask any questions you need answers for,or thing you do not understand,look on it as a big learning curve.
I wish you a good journey eve

Hi Dai
Sounds if you are going through the mill,so what can i say your knacked through lack of sleep,Let it all out if any body is entitled to blast off its you,think of it as just another hurdle,and if you refuse to jump over it,i,ll bash you with my hand bag 😛
Tomorrow is another day,try to stay positive,do not let your demons rise to the…[Read more]

Hi Angelina

How are things going with John and yourself,just thinking about you this morning,just thought i would pop into site to see how you are getting on.
love Eve

Hi Kay

Good morning to you all,another lovely day,hope you do not spend to long in the hospital Kay.Wig or no wig,fat or thin,you still will be lovely,its what,s in side that counts.
wishing you well.Eve

Hello Meike and Christin

Glad to see your dad at least got out on his good day,Nhs supplied me with wheelchair for Slim,but I bought a light weight one from Halfords much easier getting into car.I know men are not keen on using it,but we would not be with out it now,and Slim has got use to it.yesterday we went out for 5 hours just packed the…[Read more]

Hi Kay

You must be so disappointed ,its not easy when you build yourself up mentally to have the treatment,i know you started treatment in January,many of the others who started treatment about the same time, are now approaching sct.
Slim started in February sct has not even been suggested!!! will be end of July before we see…[Read more]