Hi all

Thanks for your good wishes.

Eva nice to know you are responding treatment, we must meet in Edinburgh when you are better.

Saw consultant today and even though Ian’s FLC went down a little he will start Velcade on24 March. We must get away for a few days before.
Eve
I ask consultant about new MRI scan and he didn’t know about it. Also…[Read more]

Hi Angela

My husband Ian was diagnosed in October 2012 and chose the nhs as consultant advised that he would se the same doctors. He has had really good treatment and advice from all staff.

Wishing you well.

Maureen x

Hi Andy

Good news. Enjoy your beer.

Maureen

Good news David hope you get a long remission and enjoy your holiday.

Maureen x

Hi Tom

It was a good bottle of red.

Hope you aren’t having too many side effects from the drugs.

Maureen x

Hi Tom

Ian’s BMB showed 20% plasma cells but all bloods and kidney function normal. Got at least 1 months reprieve before he starts treatment again.

Start counting sheep when you’re drinking the vodka. lol

Wine for us tonight.

Onwards and upwards.

Maureen

Hi Andy

Another hospital stay but Steph was good catching it quick. How long are you on antibiotics?

Ian’s had 6 weeks of antibiotics for his back wound which will be finishing soon.

Maureen

Hi David

Glad you got it sorted out. Myeloma site is great for information.

Hope you will be well for your break away.

Maureen

Hi Sarah

Don’t give up hope. My husband was told he might never walk again and is now walking with sticks and can climb the stairs. Be positive and take one day at a time.

My husband drank lucazade which gave him energy.

Maureen

Hi Carol
Please try not to worry I don’t believe I was ever in remission. I suffered side effect from the start and I told my consultant last week about this as I never felt well. Also I have no faith in him whatsoever this is the main reason for me going to the Christie centre. I just hope & pray that this time around they get it right. Good luck…[Read more]

Hi Carol

I had iced lollies and they seemed to work for me, good luck withheld transplant, I had my first on in May 2013 and in November 2013 was told I was in remission. On Monday I was told the cancer was back so remission was only 7 weeks, looks like I have to do it all agains
Anyway, try the iced lollies and as I said before Good Luck ❌❤️❌

Hi Everyone & thank you so much for taking the time to reply.
I was at the hospital today & had a bone marrow extraction (owwww) they let my sister come in with me which definitely helped me. I go back tomorrow morning for a skeletal X-Ray & I have received an appointment at the Christie Centre in Manchester. Just hoping that whatever I choose…[Read more]

Hi Tom

Hope all goes well with the new treatment and you don’t have too want side effects.

Keep drinking the vodka and it’ll help to kill of the mm lol.

Maureen

Hi Sarah

It will be good to have your husband home. Ian is now walking with sticks and getting stronger. We got a grant for a wet room with hand rails. He also has a riser recline chair, Comdex also used in the shower and a hospital bed. Speak to your social worker if you need anything.

Maureen x

Hi David

Sorry to hear you are having a hard time. Hope you get that holiday. What insurance company do you use?

We have planned our first getaway but only for one night. We are having at treat at Gleneagles Hotel. Will look at booking somewhere warm if Ian is well.

Maureen

Hi Sarah

Ian wasn’t advised to avoid any types of food but I do wash fruit thoroughly and we only eat red meat once a week. Was told to eat lots of proteins to heal wounds and I also give him a teaspoon ogre manuka honey every day as it is good for the immune system.

Hope M is home soon

Maureen x