EveProkop

  • Hi Tina

    Glad you have recovered and wish you well for 2014

    Maureen x

  • bandityoga replied to the topic New member in the forum Newcomers 10 years, 10 months ago

    Hi Sal

    Sorry to hear about M. My hubby is 57 and has had several operations on his spine and lost mobility. He is now walking on crutches and getting stronger after more than a year in hospital. Take one day at a time and try not to look far into the future. Comfort him but do try to make him do things for himself and be independant.

    Go to the…[Read more]

  • Hi Andy

    Had a nice Christmas and New Year at home with friends and family.

    Hope you enjoyed the festive season and that the new treatment will work to give you some remission. Ian,s ChristmasFLC now 583 so BMB scheduled soon and more cycles of CTD.

    Stay positive and yes every day is a gift.

    Maureen x

  • bandityoga replied to the topic Scottish Borders in the forum General 10 years, 10 months ago

    We are in central Scotland and get treatment at Forth Valley Royal hospital. We have found the consultants very good. I believe Dundee have a specialist unit for myeloma

    Maureen

  • Hi Graham

    Had a nice Christmas with the family and spending New Year with friends. Ian is still on antibiotics for the wound in his back but we only attend hospital once a week. He is also receiv i ng physiotherapy and can now walk short distances on his crutches. His FLC are rising, now 538 so getting BMB soon and talking about more treatment,…[Read more]

  • bandityoga replied to the topic Happy new year in the forum Off topic 10 years, 11 months ago

    Happy New Year Jean and Frank. I hope it will be a good year and a cure for myeloma will be found or a miracle.

    Love Maureen & Ian x

  • Hi Andy

    Haven’t heard from you recently. Hope you are well and had a good Christmas

    Maureen

  • Hope everyone has a lovely Christmas and we all take time to remember all the brave people who have passed away and their partners who are left behind.
    Lets hope 2014 will be a good year for all of us.

    Enjoy every day.

    Maureen x

  • Kazzam2 posted an update 10 years, 11 months ago

    @KarenHemmings Good morning all! 😉 I am finding this new website hard to navigate/get used to 🙁

  • Helen and Andy

    Wound is being reviewed every week in Edinburgh and is healing nicely. Still going every morning to FVRH for antibiotics. Up at am7.30 every morning and feeling tired.

    Looking forward to Christmas with the family. My daughter will help with the cooking. Love seeing the granddaughters.

    Merry Christmas

    Maureen x

  • bandityoga replied to the topic survival in the forum General 10 years, 11 months ago

    My husband takes manuka honey which is good for fighting infection

    Maureen

  • bandityoga replied to the topic Our Dai. in the forum General 10 years, 11 months ago

    HI Andy

    I was thinking of Dai too. It was a lovely day here and I like to think he is now signing with the angels.

    Think of him often and will miss his cheery character.

    Maureen

  • Kazzam2 replied to the topic It's Back in the forum Treatment 10 years, 11 months ago

    Hi Tom,
    So sorry to hear this, you are always so positive and I am sure your approach to this dreadful MM, will have you back in remission in no time xx 😉

    Thinking of you, good luck

    Love and best wishes

    Karen
    xx

  • bandityoga replied to the topic It's Back in the forum Treatment 10 years, 11 months ago

    Hi Tom

    Sorry to hear yeloma has come back but stay positive and hopefully you will have many more years in remission.

    As you always say onwards and upwards.

    Maureen

  • Hi Sims and thanks for the reply. I think is is definitely something I can mention to my specialist, I am seeing him on Tuesday and I think any input is a positive thing.

    Good luck & take care

    Mandy x

  • Hi Andy

    Thank you so much for your reply 🙂

    I am now seeing a Nuerologist on Tuesday so I will mention to him about bone pain possibly being related to the Stem Cell production.

    Its a little depressing to think I may have to live like this if it is damage caused by the treatment, I don’t have much quality of life and I am only just 50. My…[Read more]

  • Hi Andy

    Haven’t been to Belgium but like their chocolate.
    Hope you have success with cycle 22 and get your pp down low and Christmas will be a good time for all the family.

    Maureen

  • Hi

    I was diagnosed on 12th October 2012 with Multiple Myeloma and I am now 6 months post stem cell transplant and I am feeling terrible pains in my body mainly back, down shins to the top of my feet and down my fingers. I have seen a (sorry about the spellings) neurologist, rhuematologist and a back specialist. I have had a kyphoplasty, carpel…[Read more]

    • Hi Mandy!
      Likewise I have a lot of pain post transplant (April 2012) and getting worse. Skull, shoulder, ribs. left hip, both knees and left ankle and foot. Fingers and neuropathy do not help either! However, do not despair, Oxycontin and Oxynorm help with pain management, as does radiotherapy when required. A simple walking stick helps with…[Read more]

      • Hi Jimbob & thanks for the reply. I fully agree, I feel so sorry for my ever patient husband he must really be fed up with my ailments. I went back to my G.P just before Christmas & apart from the OxyContin & Oxynorm she has changed my medication to see if this helps. This change took place 10 days ago and all this has done is make me feel sick…[Read more]

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