Hi Pauline

Sorry to hear your hubby Marc has mm and so young. We all suffer from shock when our loved ones are firstly diagnosed. My husbnad is 57 and has been in hospital for seven months due to late diagnosis which consisted of a compressed spine. We learn to adapt and take each day as it comes. As Andy says each day is a gift.

Take…[Read more]

Hi Tom

Thanks for the information. I will save it and refer to it in the future.

Maureen

Hi Mothas

Unfortunately I do not had a good view of the Mersey. But the rooms with the view are half the size of mine so I decided I would much sooner have the space.. 🙁 SHAME

MANDY X

Good Evening everyone

Well I will have been in for a week tomorrow and to be honest I don't know where the time has gone.. I had my SCT on Thursday and so far – so good!! Couldn't feel better if I tried. Its a real weird feeling laying/sitting here waiting to feel poorly.. when you just feel good.
Sorry I have not much to tell but it really…[Read more]

Hi Eve

Sorry that Slim has relapsed, but hope that revlimid works. I think that is Ian's next treatment when he relapses. Enjoy your holiday in France and keep thinking positive.

You must be a romantic to want to get married on 14 February. Ian proposed to me in Rome in a really nice restaurant. Our first holiday was in Bermuda. We were…[Read more]

Hi Christine

My husband Ian has not been offered an SCT as he is not mobile at the moment but consultant said that after looking at all options SCT is not now considedred as first treatment. This is also the opinion in the US as there are other treatments that work without being so invasive.

Hope they can find an alternative for Chris.

Maureen x

Hi Scott

Hope the weather has improved and you are sitting in the sun. Hope your wife hasn't spent all the money in the shopping centre

Been really cold here but has improved today and tomorrow will be better. I will be gardening, although I have employed someone to cut the grass as I don't have the time when I am visting Ian in…[Read more]

Hi Eve

I have been thinking of you and hope that Slim got good results from the consultant today.

I too have hayfever, no bluebells here but lots of daffodils.

It's our anniversary on 30th May, 5 years as it's my second marriage but we have known each other for 10 years. Ian is getting out of hospital to go to a restaurant for lunch.…[Read more]

Thanks Tom.. I have been using the mouthwash also like its going out of fashion because mouth ulcers is something I have always suffered from and that scares me hence I also use the mouthwash and the Nystatin. Right nurse has give me a sleeping tablet as I haven't had much sleep the past 2 nights.. good night everyone
Mandy x

I am eating a lot but mostly all of the wrong things – I have developed a terrible sweet tooth – got to stop it I dont want to gain the weight… I will keep you posted about the x-ray – fingers crossed I am right and the doctor is wrong. hehehe, Mandy x

Thanks Tony.. thats very reassuring – about the weather at least.. haha. I love the outdoors and have such a happy social and family life I am not going to let anything take that away from me and I am going to be a Nanny in October so thats something worth fighting for 🙂 Its also my 50th birthday in October so that 2 good things to get better…[Read more]

Hi Gill

I was diagnosed last October, I am in hospital now having had my SCT today. I was on the clinical trials prior to this and I must confess the side effects I suffered were really rough. My feelings are what choices do I have so after talking to myself, reading other peoples journeys I decided I didn't really have any other choice. I…[Read more]

Hi Megan and Tom and anyone else that is following me x

Thanks for asking – yes I had my second stem cells put in today and everything was fine, they bought a portable x-ray machine to my room to x-ray my abdomen to check if I have a blood clot as my ankles and legs are still very swollen – I don't think of myself as a medical person whatsoever…[Read more]

Hi Eve

Yes I have had my hair cut into a short bob I wasn't brave enough to go any shorter just in case a miracle happens and I don't lose it – ha wishful thinking. I am already stuck in my room not allowed out for at least 2 weeks.
Yes it's still the old hospital but the new one Is in the process of being built as we speak and it will be…[Read more]

Hi everyone, well I am on day 4 of my 28 day stay in the royal hospital In Liverpool – so far so good. I have had the intensive chemo on Tuesday and yesterday I had some of my stem cells put back in. I will be having the remaining put in today. I am still very swollen – face, ankles & feet. The doctor is prescribing me with an injection today…[Read more]

Hi Eve

Ian is cycling half a mile a day on the foot pedals and also lifting weights so building up the muscles. It is very hot in the ward just now and he is only allowed 1 hour in the wheelchair or I would take him outside.

Got gardener sorted out, now thinking of getting the ironing done.

Hope Slim's BMB will show a good…[Read more]

Welcome Anne
Sorry to meet you this way way-it takes a while to sink in but I hope it encourages you to know that many of us have enjoyed some success in battling this stupid cancer.I myself was diagnosed in 2005 and although I'm not as active active and sporty as I was I'm still kicking!
This is a great site with lots of nice people who are…[Read more]

Hi Scott

Sorry to hear your SCT didn't work. Go to spain and enjoy your holiday. What part of Spain are you going to?

Maureen

Hi Mavis,Tom and Eve,
Thank you all for lovely welcome. I am still finding my way around, but I kep popping back on, which is a good sign!:-)

The sun is out today, which always make one feel better.
hope all is well will you all today.

Karen xx

Hi Christine
So sorry that things are rough but HOPE this helps. My act failed in Oct last year with a horrific 97% but they have finally got it down down with PAD.We have just been told that they are abandoning any further idea of a second act as I don't Ha ve enough stem cells so as am starting a low "consolidation" course of velcade on…[Read more]