Hi Peter…

You explained just how Melvin is. He said if it wasn't for the inability to work or resume normal activities due to the spinal cord compression, he would be able to live quite a 'normal' life while on the Dex. However – he suffers such a come down when he stops…like you, he feels so tired, almost lifeless. Only waking to eat most…[Read more]

Hi Mike

I'm sorry that you are going through a tough time at the moment. It's my partner who is 39 who has Myeloma, and is also on the MXI trial, RCD. He is at the end of the 2nd cycle at the moment. I noticed that you go to the QE hospital in Birmingham. We live in Birmingham and Melvin will be having his SCT at the QE. What a fantastic…[Read more]

Hi Tom

I have another person helping me with it all so I'm not totally on my own. Although I complain for being stressed at the moment, I feel like I need to inject all of my frustrations and emotions into something productive…if you understand what I'm saying. I may regret it, it may exhaust me but I feel I need something to focus on other…[Read more]

Thank you for your message Jo. People always say that I am coping really well and sometimes I agree. It may be the false smiles and 'I'm fine thanks' that I often reply when asked how I am. The way I see it – I have to cope, I have no choice. Who else is going to look after everything..Melvin and the children? Just sometimes, like now – I just…[Read more]

Thank you for your message Andy. It's very tough for all isn't it? Life completely changes when something like this sets up residence in your life and future. We have been referred to a Counselor individually and as a family, so our three children and myself and Melv can go. However..we haven't been yet as the Counselor cancelled the past two…[Read more]

Thank you Helen..what a day I had yesterday! I do feel a little better today, although my moods are all over the place. Our twin boys, who are 11 years old have gone off for a little break with my mum. Suddenly my shoulders seemed to drop. We have a daughter who is 16 and she is still home with us but she is so independent. She is revising for her…[Read more]

Hi Sarah Jane..

It is my partner Melvin who has MM. He is 39 years old and like you had SMM and then one day went to the hospital to find PP levels had increased and he started Myeloma XI and also is on RCD.

Melvin is at the end of cycle 2 and I think he has coped quite well so far. Unfortunately he isn't working due to his L3/L4 vertebrae…[Read more]

Hi Eve – thank you for your message. I agree with you – I am grieving and I think going through each stage slowly. Today and right now I feel angry…the denial has been with me since 2010 when Melvin was diagnosed.

I hope you are well – take care and thank you again. xxx

Hi Vicky – thank you so much for your message. reading what you wrote was like I was telling the story…just how I feel. I have also thought about using all of this in a positive way, maybe volunteering somewhere or studying maybe?! Who knows.

I hope that Colin is OK at the moment – how are you doing?

Take care xxx

Hiya Tom – thank you for your message. We have something else in common..In May 2007 I was diagnosed with Fibrosarcoma, cancer of the soft tissue and I finally went into remission in June 2010 ..as Melvin was diagnosed with MM in the December. I have to agree with you regarding the comparison of feelings – I felt more in control when I was the…[Read more]

Hi Lorna..

My partner Melvin was diagnosed with a Solitary Plasmacytoma on 15th December 2010, so our journey started nearly two years ago. Reflecting back to those days, I felt scared and unsure of what it all meant, I remember that. It was almost like I went through some kind of grieving stage??! Things have really progressed for Melvin now…[Read more]

Thank you for your message Jean. Guilt is a very powerful emotion isn't it? I think it can be a visitor in most situations. Unfortunately, I over think absolutely everything too and scrutinize myself..'have I done enough?' etc..

We have been referred to Counselling, although the last two appointments were cancelled due to the Counselor being…[Read more]

Hiya – it seems to be all go for you at the moment. Fingers crossed that they soon find you a match. Best wishes Kerry and Melvin x

Hello Angelina,

I'm sorry that we meet this way. You do seem to have a lot to deal with at the moment and i appreciate what a very anxious time this is for you.

You say that you have had the bone marrow biopsy – have you had the results now? As far as I am aware, this does give an accurate diagnosis of Myeloma. It is my 39 year old partner…[Read more]

I am so sorry Rachel, he was far too young to die, and had so much more to give. My thoughts go out to you at a very sad time. My husband died in much the same way, from infection and the shock is too much to bear, when you have so much hope.
Please take good care of yourself and know I am thinking of you
Min

How did the Traipsing go Dai? Cant wait to hear all about it in glorious Technicolor and you usual ? prose? some photos wont go amiss too.
Waiting with baited breath
Min
ps hows my book coming on?