Its very cold Bridget, and the chill in the air is cutting. The frozen north is still that,but no snow yet.we had a few mornings with frost and I dug my ski suit out to keep me warm while walking the dogs but not needed to use it yet.
I'm off to visit the grandchildren at weekend. Taking all the dogs for a change. Perhaps it will be warmer near…[Read more]

Peter would be proud of me, I have been going mad with the cordless drill.
Fixed a curtain pole that kept falling down. ( Never had curtains when I had my man!) Next put up some metal tie backs to hold said curtains back when open.
Followed by a make up mirror really its a shaving mirror but as I am blind as a bat without my spectacles needed a…[Read more]

Cant comment on that but I I bought a 'tablet' recently if all you do is surf the net they are brilliant. But if you plan to do work on it then not much use with word etc.

Look at http://www.ebuyer.co.uk I have bought loads of stuff of them and they are really really well priced with good customer service.
Alternativly suggest you look up FACEBOOK…[Read more]

Bludy Brilliant,
Worth all the agrivation to hear those words, and in view of the fact the dex is doing the 'trick' best stick with what you know:-D .
Just put a gag on Steven so he cant be Monster Man:-S
Seriously though, I am really pleased for you both you deserve a lucky break and its your turn.
Love Minx
PS I recall Peter trying to…[Read more]

Hi Bridgett and all those others kind enough to reply.

Just to let you know that we have taken the specialist at her word when she said to enjoy what time I had left (we have decided that´s 30 years in my case) and have beggered off to Spain for a holiday. Sunshine is great and it´s a real treat just to sit out and rest (although it´s ra…[Read more]

Hi Phil

Do hope the reduced dose is good for you – I asked on Mnday if they would put me back on a maintenance with a reduced dose but my specialist said that I was "passed that stage now" and says I should just enjoy what level of fitness I have now. Anyway hope all goes well with you and yes, I´m sure that the outside life is helping me…[Read more]

Ah Ray welcome
I think you mean autalgouse cant spell it but it means a transplant of your own harvested stem cells.
Dont worry there are lots of people on here who have been down the route your about to commence and hopefully they will offer you lots of advise should you need it, or just an ear when you feel you have had it all
Up to here…[Read more]

Good Luck with the new puppy Sarah, I dont envy you the running to the door every now and then but as its so much colder here in the frozen north I would want to wait till summer time when the door is permanently open !
The smell of new puppies is oohh so nice but the cleaning is ugh. My last one we had a cat flap on the back door and she used…[Read more]

Hi Helen
Our last holiday we used a company called insurancewith http://www.insurancewith.com/ they specialise with people with existing conditions and cover all cancers. Katherine refered to Revlamid as maintenanace therapy as oposed to chemotherapy and bearing in mind Peter had kidney damage and bone damage not to mention a double heart…[Read more]

Hi Helen

Had my transplant in February 2011 and we seem to have had a similar recovery history. I don´t know why my specialist thought I was too "fragile" to carry on with Revlimid although I had lost over 10% of my body weight and generally felt rotten and miserable – also tingling feet etc. My dose was 20mg which I felt was too high but we…[Read more]

Hi sarah,
I have had a whole day of weeping today and I blame the news. Yesterday evening they said it was Blue Monday
I thought what a load of tosh.
Today slept well woke up had breakfast went back to bed, slept for 2 hours and woke up disconsolate Havent stopped since and my nose wont stop running to accompany the tears. So thats another…[Read more]

Hi Val
My husband was taking quinine too but if he did not drink sufficient liquids the cramps in his legs won.
I found myself with cramps recently and once I drank more liquid it helped. Also I am told that leg warmers help. Weight lifters suffer cramps apparently and leg warmers increase the blood flow; or something like that!
Hope it helps
Min

Hi Amelie and Helan
Yes, I am in the UK Amelie and as Helen explained I was on a drugs trial and so was provided with Revlimid. What treatment are you on Amelie?
To be honest I´m not really convinced that the Revlimid was to blame but I just never seemsd to "bounce back" too well after the SCT but I do remember that I was just beginning to…[Read more]

Hi – hope the meds are helping with the bone pain. Regarding the tingling feet etc – I have had this for about a year since I have had all the Chemo – lots and lots including Velcade and Revlimid. I describe it as having an electric current though the soles of my feet and although irritating can´t say mine is too bad as the back and general…[Read more]

Chrissie, so very sorry for your terrible loss. I lost Michael to cancer (brain tumour he was 42) twenty years ago. That terrible grief does pass please do believe me and hang on. The best advice I was given was as follows: Concentrate on just breathing and eventually the rest will follow, and don´t on any account make any serious decisions…[Read more]

Dear Dear Gill,
Its so hard being a carer and knowing that the time you have with you loved one is under the clock so to speak. I know exactly where you are coming from.
Peter was on prednisalone steroids for quite a long time before Dreaded Dex. the problems he had with prednisalone were more bone damage due to taking oral bone strength…[Read more]

Dear Chrissie
My deepest condolences to you and your family.

I can only imagine what you are feeling but it may help to know that, when Peter died I was so relieved he was no longer in pain, no longer worrying what was going to work and wasnt. I no longer had to watch the handsome well built man I loved wallowing in what the damn disease…[Read more]

Hi Mandy
Tell your friend to put them in a carton of yogurt or similar desert. she wont feel them going down.

LYRICAL. As in songs? now really liking pop songs for some reason. I can recommend to cheer you up
Min
CAL for you