Min replied to the topic PROGRESS SO FAR in the forum Treatment 13 years ago
Dear Bridget, chearfull as ever, I am so pleased your experience with bendamustine is proving to be working and that your coping with the side effects.
Its pioneers like yourself that are going to lead the way for the future of others with this bl***y disease,
I hope that you continue to make progress in the right direction, and that your able…[Read more]
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
Nintendo NDS woud be mine but better no, so Weekends which we all love except when you need to see a Dr !
NDS it is again
Min
Min replied to the topic Hangers On in the forum Side-effects 13 years ago
So glad to hear your on the mend Dai, cant go into the winter with a chest infection, now look after yourself and get the wooly scarves out ready for the frost and cold so you ward off any future chills.
Best wishes to you both
Min
Min replied to the topic Fingers Crossed in the forum General 13 years ago
Hi Eve and Slim,
I can just imagine the relief you both must of felt and big deep breaths and sigh's of joy all round.
Woud I be right in assuming that these results are some months old or are they the latest results? Iether way its very good and heartening news that velcade is doing its thing for him. I hope you can enjoy the rest of the…[Read more]
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
theres only one word to I can think of and that is Happy to be home again, with my three pooches and 2 Burmans.
The managerie has all misssed me and are equally HAPPY to be home too.
PPY for next player
Min
Min replied to the topic when does it improve in the forum End of Life and Grief 13 years ago
Jean, you hit the nail on the head.
I suffered with PTSD and the councelling I got from a variety of people was not as good as the advice I got to write it all down. In doing so it is very cathartic purging of the emotions. So as soon as I get home I'm off to buy an exercise book and do it. Wish I had remembered that as I could have made good…[Read more]
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
ETYMOLOGY.something to do with words! That I can't remember cost I'm old and grey, but currently blonde from the sun. With brown skin of course, might get stopped at passport control for my entry visa hehe.
Over to you with OGY
Min
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
Sun TANNED that's me….browned off that tommorow I have to pack my case and go home to the cold!
NED again
Min
Min replied to the topic 9th November for Dai in the forum General 13 years ago
Oh dear Dai,
I think every time Iget on the m42 to go to my daughters it does my head in,I hate that road
Sorry your cold/cough is hanging on in there. Allow me to recommend echinacacold pills, brilliant at putting me right when Peter died and I was low, due to poor diet.
There will other opportunities and I am glad the young man bothered to…[Read more]
CarolBradley1 replied to the topic New and need advice on Myeloma XI in the forum Newcomers 13 years ago
Hi
I have been away so please accept my apologies for the delay. Welcome to the site, although so sorry you have had this awful shock.
I have been on the Myeloma trial since last July although I was diagnosed in 2005 and managed without treatment until then.
I have had a range of treatments including Revlimid and the stem cell transplant and…[Read more]
Min replied to the topic when does it improve in the forum End of Life and Grief 13 years ago
Dear Sarah,
I'm sorry to hear of how you feel as it makes me worry now, as I am in lots of company and doing something different. Every day and I am sure when I get home this is going to change especially with the build up to Xmas.
We went on an all day shopping spree thru the markets and souks today. I kept seeing things I knew peter would…[Read more]
Min replied to the topic Managed to see Doctor Thanks Min in the forum End of Life and Grief 13 years ago
Roz,
Be posative and take whatever help is offered and when you are back in control, your family will not fear coming to see you. They have also suffered a loss and no doubt have some issues of there own to deal with.
Michael will be proud of you, and that's the thought you have to cling to. He is watching and listening and understands how you…[Read more]
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
Yep, we never know what life is going to throw at us, good job the samples didn't work or I would not be enjoying the most relaxing time I have had in years with the son,who survived the samples from the
PHARMICUTICLES industry don't know if I spelt it right
But LES for next pease
Min
Min replied to the topic 9th November for Dai in the forum General 13 years ago
We were told that the vecade is made up specifically for each patient and that the shelf life was only a few hours so once it came up on to the ward there could not. Be any delay.
The data protection act is to do with information kept on computers not necessarily paper records
the data protection act says if information is held on computer…[Read more]
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
Bridget I will see you and raise you, I once worked in a pharmacuitical factory where we made the the contraceptive pill, foam an inter uterine DEVICE. Somehow I managed to get pregnant with my son while working with all the free samples I could carry!!!!!!
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
Looking out over the MARINA white wine followed by whisky, If you have to have it.
Swedish chef off the muppets was at our party, and laughed so much non of the Europeans understood the Muppet like joke..INA for the next person
Min replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
It just so happens I have had a mini party with so many men from the shipyard (white collar workers)
Who are off on a night club trawl while I stay home with a few GLASSES l
Of w
Leaving ses fo
r next player
Min
Min replied to the topic NO BLUE PETER BADGE !! in the forum General 13 years ago
Well done Bridget,
Hope it gets easier the more frequently you do it, I started doing it for peter then I did one bad one that hurt and he did it himself after that. Did they remember to give you a sharps box to put them in we had to ask for one!.
Hopefully you will be staying awake longer
Now. I have just learned some relaxation techniques…[Read more]
Min replied to the topic Holidays in the forum End of Life and Grief 13 years ago
Thanks Tina,
Peter died so suddently and unexpectedly there was no time for any final words as he and I imagined he would be comming home.
He said before he went into hospital that he had no intention of leaving yet but it wasnt to be.
That and having to agree to switch of the life support machine was what has made life so difficult.
I was…[Read more]
Min replied to the topic Holidays in the forum End of Life and Grief 13 years ago
Hi Tina
Glad you enjoyed the holiday, and very impressed with the windsurfing, good for you.
Now your back home I expect its just a memory, but was it difficult returning home alone??
That is the bit that bothers me, and just wondered how you coped.
Love
Min