I am very happy for you Helen, 😉 Have a good life. Pleased to have met you for a short while, you have been in my thoughts lately wondering how you were doing, keep up the good work too and make sure they FRH get the feedback we discussed about the day unit and sick people please.
Love
Min

Welcome back from your holiday Dai, and now you can have many many more.
Wonderful Wonderful news, I am so very pleased to hear you can get back to living a 'normal' life again.
Now get that book written and make sure Minnie features loud and often !!!! no excuses for not getting on with it.
Before that give your good lady wife a big hug and…[Read more]

Hi Julie
Smashing to hear from you – but so sorry for the news about your poor husband. The expression never rains but pours springs to mind – you both sound to be taking things as much in your stride as you can though and I hope you can go forward with your plans soon.

We went over to Spain to check out the house last week. Also, my husband,…[Read more]

Whatever it takes Bridget, take it.
You know as well as I do that pain is not good for you or for the people who love you and care about you they dont want to see you in pain. If Dex does the business then dex it is… Just go and find a tent to wear!! hee hee cos you know your worth it. Bite your tongue when the alter ego appears from side and…[Read more]

Can´t add any advice but I did just want to wish you all well. I know what your saying about they don´t want to investigate because of her other issues but how does your Mum feel? I know when I was very very ill I was beginning to feel I was a huge long burden to my poor husband. It´s only now that I am much much better and life is returning to…[Read more]

Hi Debs
Just to let you know I have been on Reblimid for three months and like you, am exhausted and the nerve problems in my feet and hands are annoying and uncomfortable – also have tummy upsets etc. etc.
Just returned from a couple of days in Spain during which time I had to stop the tablets as I just felt so absolutely rotten. It wasn´t…[Read more]

Hi Nadine
Welcome – although like everyone else I´m sorry that you have had to join us. Do you think your mum would be able to manage joining the site now that you are finding your way around? I suppose we mums always want to be strong for our children and I know that I am guilty of that – but here on this site I can be honest about how I am…[Read more]

Hi Sandra
Welcome (but sorry you had to join us – Best of luck with the transplant. I had mine done at St Jame´s Leeds and they allowed me to take in both pillows and duvet (my husband also brought in a kettle which we kept discreetly tucked away in a cupboard but they knew I had it and understood as my room was so cold and the drinks were…[Read more]

They can supply it but its vile cheap ice pops. There is an Asda fairly near to the hospital in Gosforth if you have a sat nav go there 1st. Buy Ice lollies more interesting than plain old ice.
There is a shop downstairs in the lobby but not much choice but the prices are crazy. Do a google map of asda in wallsend or Gosforth. Each of them is…[Read more]

I love cussing…. I love life, I love lying in bed on a weekday and weekend. I love the life I had before MM got to us. I love our children, our grandchildren and my home.
Peter made all that possible even the cussing though he never cussed at me.
I love the people who have become firm friends on here who I would never have known if the…[Read more]

Decided on some retail therapy instead and visited building society to close his account down, what a palaver.
Next its the premium bonds to cash in. how ironic is that he won £25 quid and the cheque had not been paid in.
The car (his disability one) just got me home before the petrol light came on so they can come and get it now.
Had to go…[Read more]

Dont worry they dont keep anyone in much longer than they have to, my husband was out on both occasions of his transplant the same afternoon of the transfusion. !st time he cut the grass on the same day!!!!
If you live localy they will expect you to return for bloods on alternate days. Ask Catherene Cox… Better being at home than catching…[Read more]

Our Grandchildren called Peter 'Grandad Magic' always because he did silly things like morcombe and wise trick with the paper bag and pound coin.
My Grandson was given the paper bag by Peter and told to go home and practice it last time he was here. It is neatly folded and on his notce board along with other grandad magic treasures.
Daisy rang…[Read more]

Emma was married in New York, A very short while after 9/11
We visited the site whilst there. the scale of the place is beyond imagination.
The pain was palpable for all New Yorkers
Min

You can do it Gill, if you can cope with a Builder with mm you can do the classes. More imprtantly give you each a break from one another and the mm. It takes over you life insidiously even though you dont 'have' it.
To get away and not mention it will be brill
good luck
Min

Hi Sarah,
I think occasionaly that if I had not given up work I would have a distraction and something to look forward to, but I would have missed those 5 months of being together all the time.
I dont know what to do or how to approach the coming months. but I intend to see a good deal more of my /our grandchildren than I was able to because of…[Read more]

Roz my husband was half the man he had been when he died, but I surround myself with photo's of the well man he had been before MM got to him 2 and a half years ago.
Perhaps a visit to a spiritualist church would help you to understand he is no longer suffering, and watching over you.
Im not talking about charlatans who charge you money for…[Read more]

I love fuschias, I love my dogs, I love travel and holidays, and I particularly love technology.
I was left alone the other day and went and bought a set of new house phones as the LCD Display on mine stopped working and I could not see any of the people I wanted to contact. Whilst there I did something really stupid and signed a contract on a…[Read more]

Dear Sarah,
My husband adored me and never shouted swore or got angry at me.
But as his illness progressed he changed. I think he was angry at life and the hand he had been dealt.
He occasionlay said why me? what have I done to deserve this and and the other illnesses he had overcome
Some times I am pleased he is no longer suffering others…[Read more]

My husband wanted to work as a goal and to prove he had a normal life.
He had been off work for 18months and missed the social contact and banter so work but perhaps part time or less hours is the answer
Min