Ah Dai
Why cant all mm men be like you.
Know your ill and do something about it, not sit and wait for tea and sympathy and more problems that come about as a result of ignoring a temperature.
It is so much harder to treat an illness that has been ignored than nipping it in the bud, as peter has found out to his cost.
I think you need to have…[Read more]

Gill
Its quite a relief to find I am not the only one who has to get a wayward hubby in check.
I thought I was alone in being married to a martyr who would rather be ill than admit he needs help.
I dont take any pleasure in 'grassing' him up but at least they know not to look at me when they ask him a question!
He is very sorry pixie now for…[Read more]

Hi Bridget
So sorry your having so much pain – hate to think of you putting up with it if there is something the Hospice could offer above what you already have might it be worth a short stay? Would it mean going in for very long to see if they could help? I know how you feel – I wouldn´t want to be away from home either but perhaps if it´s 4…[Read more]

Hope your feeling better soon Dai. Fingers crossed that your feeling better soon and you get to enjoy your holiday.
Carol x

Hi Susanah,
Bendamustine is a drug that is 40years old and out of license so should be cheap. Bout $500 per complete series.
here is a little bit of background american unfortunatly but interesting nontheless by its content.
I think there is a reluctance to use it because it isnt 'cool' and 'novel'
Who cares what if it works and does the…[Read more]

Hope you enjoyed Beamish Ted, its like a journey back in time, I was there last half term with my grandchildren who are a little to young to apreciate it but it brought back so many memories of childhood.
There now no problem remembering 50 years ago the fact that the decor in my Grannys house was exactly like one in Beamish
But cant remember…[Read more]

What a day, I have had.
I got to the hospital to find him having his 3rd bag of whole blood and no Idea that I had got him in there.
Then I remembered I had forgotten to pack his slippers doh.
I listened to the story of his admission, and a short while later he got dreadful rigors shaking uncontrollably. While the nurse went off to call the Dr…[Read more]

Well Well, wish he was!
Yesterday Peter went for a bag of that clotting stuff and a chat with Dr. He came home and told me that he had to go in on Saturday for two bags of whole blood.
From the time he got home, he was feeling cold. took his temperature and it was a little raised. some time later I took the dogs out and came back to find the…[Read more]

Hi Russell
My advise would be. Worry when you have something to worry about.
Maybe you have a smouldering kind of MM that has been found early and you can get on with your life for quite some time.
If you have to wait for the results from your bone marrow I imagine you are being treated at a smaller hospital as most of the big ones have…[Read more]

High Susanah
How dare they put Michael at risk because of a trial. If he needs platelets or neutraphils he needs them Full stop.
At what point will they intervene?
I believe the Dr's oath is First do no harm. I think you would do well to remind them of it.
Just as a matter of interest is it a condition of the trial that he has his…[Read more]

Hi
Sorry to hear of Stevens problems here is hoping the radio therapy gets him back on his feet. I can understand how worried you are by the lump too and I am sure they will calm your mind on Tuesday. Good Luck to you both
Peters second transplant is becoming very unpleasant compared to his 1st. In our case we are actually hope full that this…[Read more]

Why is it that 4am is an hour that keeps you awake. i can usualy get to sleep no problem at al but waking at 4am means I am just washed out for the rest of the day whilst my imagination goes into overdrive.
I think we need a 4am posting board so we can swop our demons and put them to bed.
Does everyone have middle of the night insomnia?
Min

Snap
We are having one done too. and as I write I have the man (fitter) who I thought I had seen the last of back. For a gas leak
When He had finished the job, the very last thing he did was to fit the lights under the wall cupboards and a switch.
Peter is always on the loo with diarrhoea and as I dont use that bathroom I thought the smell…[Read more]

Ah Dai
I recognise these symptoms only too well. Its like I go upstairs to get something, get to the top of the stairs and haven't got a clue why I am there!!!
Have to go all the way down stairs retrace my steps usually to remember what it was ,
I call it my senior moments. Believe you me, its got nowt to do with velcade dex or otherwise its…[Read more]

I simply don´t understand why adults who are fighting a life threatening condition are now allowed a record of their treatment progress.
Whilst I was undergoing my conditioning chemo prior to sct I asked my specialist for a photocopy of my prescription which included my monthly blood results including neutrophils etc. etc. I was on such a…[Read more]

Hello Everyone

Just a lne to thank you all for your lovely messages following my good news – a zero paraprotien level. You have all been so encouraging and just wanted to say that the last year has been made so much easier having such a support network to turn to. Nice to know that we are all welcome whatever our news is – good or bad.
I…[Read more]

Hi Russel
I feel for you and your family who must be reeling from a diagnosis of the b stard illness. I hope you are receiving the best of care that is available, and if not let us know and we will keep you right.
A diagnosis of this kind is mind shattering, and I would be lying if all of us did not feel devastated at the time of diagnosis.…[Read more]

Rest in Peace Dear Gaye,
You were a bright light at a time that I was in a dark place and I will be forever grateful for your support and humour.
I am touched that she thought of us to the end, God Bless
Min

WHAT £150 you got to be havin a laugh!
Who on here knows anything about Data protection?
I know criminals are allowed to see a copy of there record and the charge is zero theres got to be something wrong here… oops I feel a momentary annoying letter to my MP coming on if this is true! As you can see I am in Rant mode. And its not due to any…[Read more]

Hi Carol
Good news is the best and the more of it the better. Bad news happens but hey someone has to do it.
Hope your 0 pp lasts a very long time and you can get on with life now. All the best
Min