Hi and welcome!
So pleased you are having a good long run. I managed for just over five years and to be honest if it had not been for my job becoming incredibly pressurised and our elderly mum becoming very difficult and demanding I suspect I would have continued well for quite some time. I should have put my foot down and looked after myself a…[Read more]

I bet Stephen is relieved to be able to move about in bed again. Hopefully this is just the start of another new beginning for you both. Can you escape to France now?
peter is following on behind you Stephen. Again.
When I joined this site you were writing his SCT blog and I was in awe of what was to come, but found it very useful as a means…[Read more]

Dear Susanah,
A very worrying time for you, and tiring too.
I hope Michael is back in his home with you very soon and feeling much better.
Love Min

Dear Gaye,
A very difficult choice to make but I respect your decision and feel very humble that you can share your thoughts with us.
I am pleased to be able to hear from you again as I was concerned as to how you are.
Thank you for all the wise moments you have shared with us.
I visited a hospice last week for the first time and was…[Read more]

BRILLIANT. very well done.
Min

Hello Gaye

Although I don´t know you may I say a personal "Thank You" for sharing your decision. I think many of us will understand very well your thinking process – for me I know that there will come a time when it will seem more natural to go rather than stay.

I wish you peace and loving support throughout the coming days and I am sure…[Read more]

Hi
So sorry your mum is so poorly and you are all under such a strain. I was in a similar position to your mum last year and have to admit I felt not only low but a real burden on my long suffering husband. As soon as the antibiotics etc. kicked and I started to feel a bit more positive I saw the relief on his face and realised that this is…[Read more]

Hi Helen
Glad to hear your feeling a bit better slowly and congratulations on the 5 mile walk – you must feel as if your getting somewhere now.
Do you know what causes the stiffness in joints etc. – mine is so bad I walk like a penquin if I have been sat down for longer than 10 mins! Even my finger joints are stiff and painful.
I think Tom…[Read more]

Hi -whinge away! sorry your having such a poor time of it. I am nearly at the end of month three of this latest round and am on 25g and feeling pretty fed up. Regarding the sweating no I don´t have that but do have rashes and sheer exhaustion – I am now only managing 4 hours before I have to lie down again for a few hours rest and trust me I`m…[Read more]

Hi Laura

Sorry you have joined us – I`m sure you must be so worried about your Dad. I didn`t have thalidomid but other chemos give similar side effects and they gave me some smashing tablets that really helped with the sickness – please do ask for them. As mentioned already I too found that taking the chemo at night helped a lot.

Take care…[Read more]

Dai,
I find it quite interesting that you have seen a variety of Dr's from the time you 1st decided that you needed something done about a potential DVT, but not one of them has sufficient clout or nouse or ahem superiority, to insist that the scan is done NOW . Peter had proceedure cant remember what it was, may have been an xray which showed…[Read more]

Hello Craig
I would like to see more regular testing to prevent some patients embarking and continuing on drug therapies that are not working but they are being continued just in case!
the present culture of one size fits all is obviously not the way. there are too many types of MM for everyone respond to the drugs that nice tell us we are…[Read more]

Dear Sarah

Those we love don?t go away, They walk beside us every day, Unseen, unheard, but always near, Still loved, still missed and very dear.

My heartfelt sympathy for this very sad time, for you and your family
Love Min xx

Krikey Keith,
That was quick, I thought I was going to be popping in to see you in FRH. Does this mean if you become ill, you will now go to Stockton? not Freeman?
Whatever I hope its pretty uneventful, though inevitably you will be feeling proper poorly at some point.
Let us know how your doing if you can get your head up off the pillow…[Read more]

Hi
Sorry for the delay but only just read your post. If it helps my level has gone both up and down in the past (by quite a lot) and I often thought it was when I was very tired or under more pressure at work.
Hope your getting some answers – it´s difficult to ask when they always seem so laid back but remember they know all about it and we…[Read more]

Hi Jet

Thank you for taking the time to reply at such a time. So pleased the ice cube trick seems to be working for you so far. Sorry to hear you had such a poor time of it with Revlimid – to be honest I´m not enjoying it much either but do have the occasional good day when I wonder what I am whingeing about and feel very optimistic!…[Read more]

Hi Laura,
You must feel abandoned not hearing from us, sorry I missed your post.
As a few days have passed since you posted I imagine your Dad has passed the first hurdle with his medication and the dex effect has settled down a bit.
It takes a while when you 1st start Thalidomide to reach a comfortable level and as your Dad responds to All…[Read more]

Morning Ivan,
As a wife of an mm sufferer I can tell you how it feels to be on the other side of this mm problem. It may help put it into some perspective
Initially [u]Irrational[/u] shock, Fear, horror. Anger. The fear was of being left alone, horror that I had little or no knowledge of MM or indeed cancer. Anger that no one had found a…[Read more]

Welcome aboard Lesley,
I hope you will find yourself popping in from time to time, your post went almost unnoticed, but let me take the opportunity to welcome you to the best place on the webb for mm sufferers in the UK.
Hopefully we can lend an ear to you from time to time or listen while you have a rant.. Dex makes you do that, even when you…[Read more]