Hear Hear
Min

Hi Ivan
Good hiccups cure. Half a teaspoonfull of sugar on the back of the tongue for a short while then chew it. works for my man Google hiccups +sugar

Min

Oh deary me, two glasses of wine and I have the hangover from hel l Bridget.
I dont think I have been so stressed in a very long time. Woke at 4 and never got back to sleep. Hospital this morning and consultant told Peter his numbers !*!*!!!* wish he had not as I went into anxiety mode; not good, sent him off to see the transplant co-ordinator…[Read more]

Thanks Helen that does help – it´s really encouraged me to put up with feeling rotten – I might stop whinging now!
Best wishes Carol

Sarah,
We are praying for you both.
Love Carol

Hi Ivan
No treatment other than a monthly injection to help with the anemia – but no chemo or anything. I plodded along quite well like this until last June when my paraprotien spiked when I was offered a place on the Myeloma 11 drug trial using Revlimid. This seems to be working for me at present.
Glad to hear your symptoms are minimal to…[Read more]

So sorry to hear of you disappointing news. Dex is horrible isn´t? As if you both didn´t have enough to contend with. We live in Yorkshire so if we hear any thunderclaps we will understand perfectly.
Thinking of you and pray that your luck changes soon. Love Carol xxx

Hi Loraine
So pleased to read of you lovely, if unexpected news. How lovely for you and thank you for telling us as we all know that any good news spurs us on. Hope everything continues to go well. Carol xxxx

Hi,
Wow, I am so pleased for you, what a fantastic result. You have really encouraged me as I am at present on Revlimid (without dex)25mg and not feeling very well with it but if it works it´s worth it. Do you think they might reduce my dose – does the paraprotien have to be at 0 do you think?
Hope everything continues to go well and that you…[Read more]

Hi
Hope everything is going ok and you are getting on top of the routine – I found it very confusing to start with. Yours sounds very similar to my protocol and althought the steroids did make me feel quite upset and grumpy it has been worth it as I have come through the transplant well.
Very best of luck – if you feel grumpy you can always…[Read more]

Hi, only just read about your situation and was horrified. So glad you seem to be getting the right attention now but sorry that you have all been through so much just to get to this point.
Congratulations on your wedding – who needs money if your together?
My very best wishes to you all and prayers for your Mum that her strengh improves a bit…[Read more]

Hi, I had my transplant in February of this year and have not had "achey legs" (but still have a lot of back ache etc.) However, I too am very tired but suppose this will improve when I finish my current round of chemo. Has anyone retuned to their "normal" energy after transplant? – Suppose its asking too much but it would be lovely to think we…[Read more]

I can see your disappointed Eve,
but don't despair remember this is a marathon not a sprint!
There will be many ups and downs on this journey. ( I am struggling to spell as just had a pre dinner glass of wine mmmmm)
Take into account his spell in hospital when he was ill and imagine the priority now is getting him fit,well and some weight back…[Read more]

So sorry to meet you like this – we all understand how shocked you and your family must feel. I don´t know if this helps but I was diagnosed in 2005 in my early 50´s and remained very well until last year. Even when they decided we had to start treatment I was still working full time although I did feel very tired by then. Anyway, here I am, j…[Read more]

Hello Gill
Im pleased to hear you have Stephen home at last.
I know exactly what you mean about the fancying food and then not eating it. When Peter came home I had a fridge full of food that went into the dogs (at least it wasnt wasted) but I know how soul destroying it is to make tasty morsels that cannot be consumed after special…[Read more]

Hi Ivan
My husband tried curcumin as an alternative treatment after his SCT. I read that asparagus was amazing and fed it too him as often as I dared. But if these things worked no one would be taking chemotherapy or thalidomid.
It was difficult to say if it kept the beast at bay or not but when he came off it his numbers rose significantly.…[Read more]

Hi Dai
I think the important thing is you do have some treatment that will see you ok until such time as you get the Dopler scan, no doubt by the time you get it, the medication will have been so effective that the dopler with prove negative.
Im pleased you finding the low dose easier to contend with and hope your fingers recover soon from the…[Read more]

Hi Ivan,
Welcome to the exclusive little mm club.
I am married to mm sufferer. I recognise the names of your interim medication. Ferusemide will give you back your previously slim legs.LOL provided you drink plenty of liquids. Statin will bring your cholesterol down . It goes up because your kidneys are leaking protein and for some reason this…[Read more]

I Cant take credit for my thughts Dai, I read it and watched a video from usa that Jet suggested there had to be more consideration for the quality of life whilst treating MM and it also said the results on lower doses of drugs where just as if not more effective than hard heavy doses.
In any event, I am pleased your feeling much more chipper and…[Read more]