Please don't apologise Gill I know how hard it is when they are released from hospital and how frail from SCT. How is Steven? has he picked up? I don't suppose he can sit out in the sun either unless you use factor 30. Best wishes to you both

Brought Peter home at lunchtime having spent 5 days in Hospital with neutropinic sepsis..something…[Read more]

Great to hear positive outcomes although it´s plain that a huge effort and a mouuntain of determination has gone in to this. Well done – you must be so proud. Another example which spurs me on to grit my teeth and keep horse riding even if it´s at not quite the level I used to have – just good to keep moving.
Congratulations.
Kind regards Carol

Peter is on the mend and very much better.He is weak as a kitten but lovley and rosy compared to the grey yellow he has been.
Thank you everyone for your kind thoughts and good wishes,tommorow a decision will be made as to wether he is fit to come home. Hopefully we will learn what happens next too.
Love Min

Thank you to everyone for help/advice. Changed pain relief and so am feeling much better. Just had my first proper hack out with my horses since last summer helped by my super husband who built a special mounting platform for me which my horse Harry has taken to like a duck to water. Whatever your passion is try not to loose it – you might have…[Read more]

I am so sorry that you have had this awful news. I hope this helps. I was diagnosed in 2005 at the age of 50 – then considered quite young for this awful disease. I had my first transplant in February of this year after a year of quite difficult times. Anyway, despite fearing the very worst, and having a fairly worrying and slow recovery time…[Read more]

Hello everyone,

I'm Christin's mum.

To say the least this has been some roller coaster ride so far. The side effects of the steroids are not very pleasant but we can manage..just need to stay calm! Its the pain that David is in is very concerning and hard to watch someone you love being so uncomfortable! We are having an appointment on…[Read more]

Hi Kieth pleased to hear your ok, have a lovely holiday/break. Forget all about hospitals and needles for a while. Peter is in the Freeman right now in the ENT ward… they have never nursed a cancer patient so when I went in tonight to shave his pi bald head they were shocked. Ward 33 where you will be is a lovely place and really nice staff…[Read more]

Hi Susannah
My husband had had cdt an sct followed in short time by velcade and finally Revlamid. The latter two stopped working after 4 cycles. We discussed Bendamustine but it was decided that as it is very much like melphalan that they would give him a large dose then another when he would have a further sct. He is feeling the effects now of…[Read more]

Hi
The hospital is 7and 1/2 miles away so only a 20 minute drive in heavy traffic. The dogs well we have three labradors6 9 and nearly 13 yrs so cant really ask anyone to have responsibility for them. Fortunatly we have a massive dog flap on the garage wall so they can get out into the garden when they need to. The walking of them is actually…[Read more]

Hi all
Peter is proper poorly. His cough and throat are slightly better. His breathing is laboured and raspy. He now has dreadful diaroheah
He will remain there until Monday at least. They finaly introduced reverse barrier nursing today. Apparently no one who booked him into the ENT ward bothered to tell the sister he was neutropenic. He is…[Read more]

I have seen that Dr almost every day in a corridor in the past two weeks and she looks away whenever she sees me………she should be hanging her head in shame. If she had acted sooner Peter could have been treated long before he deteriorated

Before Peter was diagnosed with MM he was attending the renal unit for kidney failure. Every week he had blood and urine tests and one week after he had had an xray for a back pain which showed his 1st 2 crushed vertibrae his blood results taken the previous week showed raised calcium level. She said cant understand why you should have a calcium…[Read more]

Well done that man. I love to hear of success stories and I am sure it is in no small part due to your encouragement Mari. Hearing of someones achievement with mm is just what we need.
At any time of the journey there is doubt, but your news blows it away.
Love Min

Hi Bridget,
The 'mac' nurse Peter had simply wrote the prescriptions herself, no reference to the Dr at all, other than to send him a copy of of the script.
I am currently in two minds wether to contact her again after over a year, as peter was admitted to hospital today and I just felt she would have smoothed things out to make it easier,…[Read more]

Hi Angelina,
I am so very pleased to hear that John is in agreement with you, I doubt if your sister in law would be able to put herself in your shoes, otherwise she would not be so negative.
For my part, I am not in your situation but about 4yrs ago I bought a gold backed notebook of the a5 size and started to recount some of my own memories…[Read more]

Brilliant news Colpot and long may it continue.
Peters venture into Revlamid started out well then sadly stopped after 4th cycle. But life goes on. It never fails to amaze me how everyone responds differently to these drugs.
Just goes to show we are all different in every way ,under the skin too.
Min

Dear Dai
I am so very pleased for both you and Janet, what a blessed relief it must be. PN well you can put up with that for a very short while, and it will all get right.
As long as you can still plonk your fingers on the keyboard you can continue to amuse bemuse and abuse us. Just kidding about the abuse!
I am not surprises your in your bed,…[Read more]

Hello Gill and Steven,
I think I know just how Steven feels as Peters mega melphalan is now kicking in with all the dreadful side effects.
I sincerely hope he starts to pick up soon and you can get off to France and recuperate.
Before you go ask you medical staff for a referral to a pain specialist who can get Stevens pain under control. I…[Read more]