Hi Roberta,
I fully agree with Jet, let them go and get on with your life.. If your husband questions it, tell him that this is the new you, having beaten the odds with your MM your not going to attempt to beat the odds with his family….
We did this about thirty years ago when my husbands parents neverreally acknowledged my children as…[Read more]

Hi Bridget,
Is this the first time you have had the benefit of a Macmillan Nurse? I cant praise them enough as Peter had one what seams like an age ago but its actualy 18months. She was brilliant and not just there for the patient, she looks after the family too, understanding how they are affected by cancer diagnosis. We have not seen her for…[Read more]

Hi Dai
I have a very vague recollection of Peter feeling absolutely washed out and worse on his week off when he was on velcade…….he feels similar now with Revlamid! whats that all about then. He did have several 'days off' the medication as really beats the heck out of you. Hope they get to the bottom of it as its seen off your immediate…[Read more]

Hi Liz,
Thats what we are here for and glad he is now comfortable and of course so are you now that your mind is at rest
luv Min

I have to own up, I am not that clever; and only resposible for posting a thought that was sent to me.
Im afraid my only contribution to the words was posting it………. I am currently trying to find joy and build memories, This verse made me wake up to some strong thoughts
Min

I am so very pleased that life is back to 'normal' for you both.. Good news is always a boost for those in utter turmoil. Long may it continue for both of you. Nicki,
Love Min

Hi Liz,
I concur with Jet and the professionals are always the place to go for pain.
As an afterthought. If hubby has had further injections of GCSF after his SCT.I know Peter had several to get some 'numbers' raised and had forgotten the pain that the injections bring about; could it be the same pain that he got when he had the GCSF for his…[Read more]

Hi again Ali,
You just concentrate on yourselves for the moment and when your not quite so stressed Im sure you will be able to contribute in the same way all of us were when we were in your position.
When they get to the cause of the problems with Guys movements and mobility they will do whatever is needed to make him as comfortable and…[Read more]

Dear Dai,
You have a gift ……………………knowing exactly what to say……………………………………. and exactly when to say it and I for one am very grateful that you have said what I would have liked to say but didn't know how.
MIn:-)

Absolutly flipping brilliant news.
Brightened my day after reading the distressing news from some of our friends. Just what was needed Dai
love Min.
PS lambton worm pronounced warm in Geordie land

Brilliant News Bridget.
What a relief. I am so pleased for you.
Those worries in the middle of a dark night always frighten you half to death.
Sunshine in the morning is a great leveller. Perhaps when you get some new pain killers you can carry on where you left off with the spring cleaning.LOL Just don't do more than your body tells you.…[Read more]

A very warm welcome to you Sally and of course Guy. Please feel comfortable in our unique little 'club'
Its very comforting to chat -even if it is on line to someone who understands how you feel.
Especial in the small hours, but mornings make things look soooo much better.
I hope Guy does not have to spend too long in hospital, and when he…[Read more]

Great News David,
NOW get on with you life and enjoy it. I know how every little symptom worries the he**l out of us. But just living a normal life while you have the opportunity has to be the answer.
I have a pain in the neck too…. Its called Peter!
Vasbyte
MIn

Hi Debs.
Dont despair, it was explained to me that when you start on a drug and it works well its because the 'load' is greater for it to deal with. When the 'load' is smaller there is less of a need to Punch it so to speak, so the results slow down. If the result is little and often that is what matters. Think positive thoughts. The beast is…[Read more]

Dear Susan,
Kevin was an inspiration to us all and he spoke often of his fight with the type of transplant he was able to have. I read his story in the Myeloma Matters booklet and he was incredibly brave to have fought so hard for so long. I know you will have many happy memories of your lives together which will bring you the strength to…[Read more]

Hi Eve.
Im so pleased to hear that Slim is finally making progress…:-) You will have him home soon, and be able to get on with your life again.
I was in your place, some time ago and had not found this site at that time but I know I would have given my eye teeth to be able to hear something positive from others who had been thru the…[Read more]

Dear Tina,
I am so sorry to hear the dreadful news of Patricks passing. I know things will be very raw for you at this time and hope that the many happy memories you have of him both before and during this barsteward illness will comfort you at this awful time. My sympathies to you and your family.
You are in my thoughts
Love MIn

Hi Eve
How is Slim today? any good news to tell us. Forgot to tell you my man had lost 4and a half stone and shrunk by 4 inches since the beginning of this god dam n awful journey.
I lost a stone in weight and lost my mind with worry. I have put it back on but the minds lost in the wilderness if I could only remember why I climb the stairs…[Read more]

Hi Marian,
There is just so much to take in at these consultations and it does not help if the Dr doesn't make an effort to ensure you understand them. But don't worry there is lots of information on this site. Download the info guides and read what you can. Not much of it will make sense to you at this stage but as time goes on and he gets into…[Read more]