All the very best for you shirley. Im sure you will be home before you know it, Lucky You to have had Christmas early, you missed those massive queues in the supermarkets ! Might try some of that myself.
I believe the weather is about to turn awful so batten down the hatches in Devon. (hope I remembered correctly) if its not Devon wherever you are
MIn

Well that one evoked some memories with us golden oldies. Coming from the North East but having spent a lot of time 'down south' when Peter was in the RAF. I know for sure that it is definatly two cardigans colder up here!
My memories of winter are of sleeping with our coats on the bed when it was really bad. The windows being frozen with ice…[Read more]

Hi Kevin,
Haven't heard from you for a wee while so just checking in to find out if your OK, Hope to hear you have made a tiny bit of improvement since last post. Get well soon
On the plus side all of that bl***y snow has melted up here in the frozen north. But its still cold. Dread to think of the central heating bill to come.
Regards
MIn

Hi Jean and Frank.
What a b***t* go on holiday and find yourself poorly Frank. Trouble is if we wrap ourselves up in cotton wool we would not leave the house. Im sorry it turned into such a disaster, for both of you. Jean worrying and Frank suffering.
Keep warm, try not to get a chill, and hope your journey home is not too arduous.
As a…[Read more]

Hi Tom
The only one I have absolute confidence in telling you is your platelets are absolutey spot on perfect. The only reason I know that is Peters are dangerously low at 50 something hence the reason he could not have his velcade last week. The other numbers look like his looked before he started his velcade at pretty darn normal. So dont…[Read more]

Gill twas me who told this site about Healthspan, I have used them for years. Buying omega3 pills. Tip of today if you have an old dog (not your partner LOL) I have started givng my 12yr old lab one of there products called flexijoint and he is behaving like a puppy, with no aches or pains. Wish I could persuade Peter to take…[Read more]

Oh Gill,
I feel for you and Stephen, whilst Peters remission period was shorter than Stephens having had any kind of normal life without meication and tests and more tests it was a wonderful time.
Peter would and did say today, that he feels fine and cant understand why he is or was unaware that the beast is back.
Yesterdays nightmare is over,…[Read more]

As well as the fact that we still have snow after 14days which is driving us mad. Today the cause of Peters breathlessness was revealed,
Following a clinic visit we saw the consultant who did bloods followed by a scan and xrays which showed up as a blood clot in each leg behind his knee.
That was the 1st kick in the slats followed by the news…[Read more]

Hi Stuart,
Big thank you for the new web site.
I am finding the discussion forum, very slow to load,compared to the old one and the last new one: both on an apple mac and windows xp. Am I the only one experiencing this slow loading of any page on here?
Used to be able to click and see, now there is a considerable delay after click!
Min

I love it Gaye so much so I have ha to steel your photo for my facebook !
Just wish that was the kind of snow we had, It is now over a week of daily snow and freezing temperatures.
WE are sick of it. Driving is a nightmare. Walking is exhausting. The central heating is on 24hrs, Where is the Global Warming?
Min

Roz,
Peter does not talk much to me about his mm, and having been off work for 18months he was pretty much reliant on me for any conversation.
His boss came round on 2 or three occasions in all that time and he chatted to him, then his boss got bowel cancer and started on Chemo etc.
There conversations now are weekly, comparing treatments…[Read more]

Here is the photo of our snow
Thanks for that advice David . Don't have time to read papers these days but can surf e bay and have ordered 2 pairs one for each of us.
Just learned that I can apply for redundancy so will finally find time to read the Papers if I get accepted woopee do
Min

The powders peter was given sound like the ones Bridgest speaks of and they are called PRO-CAL. Peter used them when he lost over 4 stone in weight. Only on prescription and really are tasteless.
Your dietician nutritionist or Macmillan nurse can decide if they are suitable for you. In the mean while tuck into Bacon and Eggs, and all those things…[Read more]

Well you sound really Perky—–get it. Keep it up and you will be home before you know it.
David, love your choice of music to get those cells seated, but need some soothing music to let them rest once they find there way home. Not so much of the rock as serenades. Don't want them jumping off ship
Don't you think…[Read more]

Peters started his second cycle of velcade yesterday, and today he is breathless so its obviously the velcade thats causing it. But not unbearable. However he is back to using his stick as a result to rest on as he cannot walk far again.
Update on the tank…. he is using it to chase the cats who are terrified of it. But as a passtime it…[Read more]

Hi Norman
Firstly, look up on this site http://www.myeloma.org.uk/intro-to-myeloma/myeloma-news/ News about zometa.
A biphosphonate that my husband has been on for 18months now. He has a drip in the day unit every 6 weeks and it takes about 30minutes, following which he usualy feels as if it helps with his bone pain. His consultant has several…[Read more]