Min replied to the topic Michael suffers with this in the forum Side-effects 15 years, 5 months ago
Hi Jim
Peter starts on velcade on Tuesday next week. His consultant warned him about PN and said to let them know if he has any tingling at all and they will lower the dose and or stop the treatment. How long ago were you on it? What is Acetyl L-Carnitine and Alpha Lipoic acid. do you take it when you have pn or to prevent it?
Anyone got any…[Read more]
Min started the topic one for the beta team In case you dont know!. in the forum General 15 years, 5 months ago
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W ell blow me having got home and looked this up I see that the bold the italics and the underline button are obviously working but I cannot see this as I type or even after I post. So its not until you refresh or something that you see the bold etc…Sorry about that and please ignore my prattling on. Do I fell like Ive got egg on my face…[Read more]
Min replied to the topic Ice cubes in the forum Treatment 15 years, 5 months ago
Hi David,
the way it was explained to me was that the tissue in the lining of the mouth is renewing itself more frequently and faster than the other cells in the body, and that the ice was a way of protecting those cells. but you have certainly given me something to think about… Having said that Peter had his harvest at a time when he was off…[Read more]
Min replied to the topic Scenes from where we live in the forum General 15 years, 5 months ago
Lee that pic makes me all soppy cos Iived in Lincoln mostly Swinderby for about 10 years when my husband was in the RAF. Often wish we had stayed there. Because its two cardigans colder her in the North East!
Min started the topic Spell check only works on an apple mac. in the forum General 15 years, 5 months ago
I am not sure if you are all seeing the same thing but I use an apple mac and as far as spell checker goes,
What I see underneath a wrongly spelt word is a broken red line. If I right click on the word I get options to change it to the correct spelling or I get a spellchecker option to correct it automatically whilst I type. I do have Office…[Read more]
Min replied to the topic Ok where do you start in the forum Treatment 15 years, 5 months ago
Bridget, the Doc discussed a sibling donor sct, but sort of played it down with the 20% failure rate, but in truth, the siblings Peter has access to live 'down south' and both have their own health problems. His youngest brother lives abroad and and not communicative!!! if you know what I mean. Youngest sister has fallen off the face of the…[Read more]
Min started the topic Ok where do you start. in the forum Treatment 15 years, 5 months ago
My husband had a transplant of his own harvested cells in may this year, whilst he did not suffer too harshly with side effects, there were sufficient to make it a very stressful and uncomfortable time. Unless you know otherwise I think he may hold some kind of record for the length of time he was in hospital following the transplant of his…[Read more]
Min replied to the topic Welcome! in the forum General 15 years, 5 months ago
Very Good Just hope I can get the hang of it. Love the opportunity to delete as sometimes have second thoughts after a post so thats a brilliant idea. Using an apple mac and will try windows later. Tried windows all morning and could not get on to post Well done team on the improved layout. Attached photo is taken in August when we went to the…[Read more]
