[eveParticipant]

Dear Min

I have just gone back to your posting and noticed the attachment in the left hand corner,Thank you sharing your photo with us,Slim never goes on here but occasionally ask me why i am laughing and I read out to him little bits.
He asked me to personally say how sorry he was for your loss,

I hope you keeping well and you are in our thoughts Eve and Slim

[eveParticipant]

how about
YESTERDAY
never a truer word sung by Matt Monro

DAY

[eveParticipant]

Hi Amelie
It is nice to hear something positive,it was something he dreamed of and you made it come true,I like to think some good comes out of bad things even if it is only a learning curve.

I hope both of you have a long wish list and you make every day count.
When my husband was first diagnosed my thoughts were we are so lucky,we have done so much with are lives,people still look at me if I am mad!!!! but that is the way I feel,if we had waited for retirement at 65,we would have missed out on so much,and that why we are so lucky

So make sure you make everyday count,and you are right it is a victory,and lets hope we have lots,lots more of them.Eve

[eveParticipant]

Hi Paul
Have a drink while you can,it is allowed because your taste buds,will change some times drastically,my hubby has always liked his wine,and G&T does not like anything now LOL more for me:-P

Good luck with your treatment Eve

[eveParticipant]

how about DELINEATE
Cheated a bit Slims the brains in the family
I have started reading some post out to him though,this morning he was as shocked as I was about Peter,but I think Min would like us to post as usual
Eve

ATE

[eveParticipant]

Oh Min
I am crying as i post so don,t worry if it does not make sense,So so sorry,I just cannot believe it,I know it can happen very quickly,but he was still was walking about.I thought he was going to get over this one.
My heart goes out to you,I just wish I could do more.
All my love Eve
Min I just keep reading your post,so have come back on to edit,as you know Slim was in the same situation as Peter,and if its any comfort to you,Peter would not have realised what was happening,Slim lived but has no memory of ITU at all.If there is anything like cyber hugs I am holding you now Eve

[eveParticipant]

what can I say except I am a woman.I have the right bits,just not working Eve

[eveParticipant]

Hi Sarah
Glad to see you are holding up,tell us about your grandchildren. Eve

[eveParticipant]

Bridget you have made me cry,and i have broad shoulders,Bridget do as they ask ,
Go to the hospice and let them get your pain under control.
You have always told us no one should be in pain time to walk the talk,
hugs go out to you Eve

[eveParticipant]

Hi
I thought it had to be together eg:ESS ———-BLESSED.
i had trouble too Eve

[eveParticipant]

Hi Paul
I am a carer to husband Slim,I sent you an email to say something wrong with your posting,other wise a lot more people would be giving you a welcome nod,no one seems to be able to reply to it.
My husband was on cdt to your cdr on myeloma trials,most people take revlimid before bed time helps you sleep.Specially after 4 days of dex you get a bit,dextatuide moment.
I would say try to do things as you would normally,but listen to your body if things don,t seem right,and your not sure,you can always ask away on here,but often enough they will tell you how important it is to seek help,you most proberly have a 24 hr help line, Welcome to the club and good luck on your journey Eve

[eveParticipant]

Dai i do not know why you expect to be informed you only the patient,it does not matter that you have been waiting all day for something and it,s been over ruled by some one further up the ladder and no one has told you,just remember you are now an institutionalised patient:-P
I am counting those days to your holiday now .Eve;-)

[eveParticipant]

Hi All
Must admit I never got pocket money,but I can remember going to the pictures on a Saturday morning,I think thats were my love of western come from,but my big thing was Flash Gorden,he was always on the point of being killed and you had to come back next week to see what happened.!
Talking about cigarettes we could buy looses I know they cost a couple of pence,but cannot remember how much, my mum used to send me to the corner shop

I have kept an old coin,it,s a threepenny bit. Eve

[eveParticipant]

Hi Min
Hope Peters picking up a little bit,I use to worry about Slim and his dignity So i tried to be around as much as possibly,but he was so ill,he cannot remember any of it.
I think this will alter his own perspective of illness,and i think your life will get a bit easier Min.
Might do Peter some good to keep a picture on your phone,then when he plays up you can remind him how ill he was. Eve

[eveParticipant]

I agree Min we should be able to double up at least 2 of those appointments,We rang last week just to remind them of things that needed to be done,and was told not to worry things were in hand!!!!
when we went on Friday no appointments had been made,nurse made blood and Zometa.Told me nothing had been arranged to late to get hold of anyone.
bank holiday Monday,then Tuesday on holiday,Wednesday sick.it is now 9 oclock on Thursday morning so will try again.

What I question,if we did not check to see when are appointments are,when would they tell us??
we have not got round to the bone marrow yet,or samples for the trials which in theory should be done at end of cycle. Start phoning now,was hopeing not to have to think about hospital on week off.EVE
ps managed two double up on 1 appointment plus might be able to do same on another,nurses comment .b—–y s——d

[Author]

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