[eveParticipant]

HI Jeapal 23
Thanks for info on insurance,cheapest that I have seen,have been looking for awhile.
Hope to book something when we know results end of July also thinking of trying to make nz to see daughter so insurance is very welcome
it gives you so much to look forward too.
Hope you have a wonderful holiday. eve

[eveParticipant]

Hi Dai

Well we do not need to ask were all that talent comes from:-)you have every right to feel very proud,this is what life is about,doing a good job.
I know the feeling of missing a daughter,one of my daughter,s live in New Zealand only moved out there3 years ago,taking two very young children with her,so journey home is not on the cards.
I do not know how people managed before Skype,sometimes it,s not easy to keep my emotions under control,and the last thing I want to do is upset her being so far away,she says she feels I keep her out of the loop sometimes,but its hard.
I find Facebook handy as well,we have a private family setting,so if i do not feel like phoning or Skype,Family setting lets family only know any news all at once.
it makes one appreciate modern technology ,but I am grateful to my 13 year old grandchild for helping me,although she does look at me sometimes,and sighs.
So glad your feeling a bit better,long may it continue.Eve

[eveParticipant]

Hi Sarah,
Just so sorry to here sct failed,i agree with Bridget it is a bstd illness,Slims on a low dose of Dex now and seems to be coping better with it.
I even let him drive now,before every journey was,like a nightmare.
Let us know how you get on. best wishers Eve

[eveParticipant]

Hi Tom
I won,t ask what you do with the cucumber ,the mind boggles!!!:-S
PS is it any thing to do with onward and upwards

[eveParticipant]

Hi Gill

Welcome to this site, I think we have 3 Gills now so do you become gill20?
Sounds if they have caught you early with having mgus.
My husband has mm and is on Myeloma X1 trials he got cdt side on 5 cycle having 6 cycle then see consultant.Just had another bone marrow sample taken yesterday.Thing seem to be going in the right direction,except for a few hiccups along the way.:-( Have agood birthday,enjoy a drink,you might just go off it,once you start treatment,my husband doesn.t enjoy any drink now,he dreams of enjoying a good bottle of wine again.:-P
best wishes eve

[eveParticipant]

Hi Peggy
My if you have not got enough on your plate and this has happened you must be devastated.What a start to a birthday.It will get better,I know that it does not seem this way right now,but there are people ahead of you with not just myeloma,but extra problems as well so you are not alone on this journey.

Its my husband with mm,I also have a grandchild with cp,I can no longer help my daughter,the way I use too,It is amazing how things resolve them selves,I know its hard right now,but deal with it one day at a time.

Peggy try not to think too far ahead,looking after a teenager with special needs causes fatigue plus this illness,i know from my daughter,when it gets to a certain point,social services do step up,get in touch with your social worker straight away,get your doctor on your side.A new package will be worked out.

You do not say were you are,there are support groups in some areas ,this sight can always answer questions,and be there for you,Ellain the nurse is very good,phone or e mails.there is so much to take on ,so just do a little bit at a time,it will seem so much easier in the future,charts for tablets,make life easier,when to take them,becomes easier.
Do you have any support at home,?
After you have been to the hospital post and ask any questions you like someone will be able to help you.
Try to enjoy a little bit of that birthday,even if you do not feel like it.

best wishers Eve

[eveParticipant]

Hi Helen
Good to know your mum feels a lot better. Its very worrying at the start,but your mum will soon get into the routine of things,do keep posting,it might help your mum to post as well,there is light at the end of the tunnel.
There will always be people who can help you,with any questions, so good luck and keep in touch eve

[eveParticipant]

Hi Helen

Sorry you have had to join this site,but you are welcome.
this is what the site is for to ask question,get support,and rant and rave if you wish.so welcome again to the big learning curve.

Ask your Questions on the other sites as,Re starting a discussion is not were people on this site look very often,you will be picked up ,on other subjects and get answers quickly.hope thats some help.

As for temperature ,good your got it checked,but if it keeps rising and your mum gets any other side effects,go back,make sure they take blood to look for infection,do not accept they know best,if you feel that your mums not responding,you will have to make yourself heard.
I know all this sounds worrying ,but it will make more sense it a couple of months,and never apologise for asking questions,to anybody.

keep in touch Eve

[eveParticipant]

Hi Gill

Welcome to the site,Its either you so shocked or it is a relieve that at least you know have a name to your illness,sorry you have to join us.
Ask any questions you need answers for,or thing you do not understand,look on it as a big learning curve.
I wish you a good journey eve

[eveParticipant]

Hi Dai
Sounds if you are going through the mill,so what can i say your knacked through lack of sleep,Let it all out if any body is entitled to blast off its you,think of it as just another hurdle,and if you refuse to jump over it,i,ll bash you with my hand bag 😛
Tomorrow is another day,try to stay positive,do not let your demons rise to the surface,
It does sound if your bloods need checking,you take care and remember,there are people out there thinking about you,even stupid scousers like me.Eve

[eveParticipant]

Hi Angelina

How are things going with John and yourself,just thinking about you this morning,just thought i would pop into site to see how you are getting on.
love Eve

[eveParticipant]

Hi Kay

Good morning to you all,another lovely day,hope you do not spend to long in the hospital Kay.Wig or no wig,fat or thin,you still will be lovely,its what,s in side that counts.
wishing you well.Eve

[eveParticipant]

Hello Meike and Christin

Glad to see your dad at least got out on his good day,Nhs supplied me with wheelchair for Slim,but I bought a light weight one from Halfords much easier getting into car.I know men are not keen on using it,but we would not be with out it now,and Slim has got use to it.yesterday we went out for 5 hours just packed the car with everthing and enjoyed a good day out.Tired but sleeps like a baby with all that fresh air.

Christin,we are all on this journey,Slim,s way of fighting it was all wrong to begin with,he made the mistake of thinking,this is not happening,if I mentioned anything ,he said i was fussing,(nag nag nag )

Out of breath pain,numbness,what do the hospital say,have you phoned them?
I know how hard it is to make that call but just get it checked out,just for your own peace of mind.I cannot tell you how important this is.
please let us know how you get on
best wishers Eve.

[eveParticipant]

Hi Kay

You must be so disappointed ,its not easy when you build yourself up mentally to have the treatment,i know you started treatment in January,many of the others who started treatment about the same time, are now approaching sct.
Slim started in February sct has not even been suggested!!! will be end of July before we see consultant.[Although i give Hints]Just talk about next stage of treatment to decide in July.So take heart at least your paraprotiens are down,and they have done the harvest:-)
I think a little retail therapy and pampering is called for;-)
Good luck with your shave, best wishers Eve

[eveParticipant]

Hi David
That is wonderful news,you must be feeling so high,and its great for us to see someone turning that corner,Champagne is the order of the day,I can see you now cruising up the Rhine sun setting sitting in the stern with a glass of champagne with your lovely wife,thinking isn,t life great,just wish it was me in my moterhome on the bank waving to you.

have a lovely time Eve

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