[eveParticipant]

Hi Dai
I can understand you being angry,

You know you have to keep your eyes wide open,not giving Zometa early is an example.

Why wait?? Ring up speak to someone about the injections,this gives them time to have a talk,before they see you again.Eve

[eveParticipant]

Hi Wendy

It is the only way to do it

Remain positive and get out and do as much as you can!,
Have bought new Motorhome scaled to a small one,we always said we would do the UK when we were older,but it looks if Slims health has bought UK near.
A moterhome. Floats are boat,not one for hotels unless its some were like St Lucia.
So glad to see you made India love your blogg s Love Eve

[eveParticipant]

Hi Gill

It's lovely to hear from you,how are you getting on,??? When do you go to France,the first year is hardest,I hope to hear you have a smile on your face thinking of all the good times you had with Stephen.

Slim looks great curly hair and has put on weight!!!,aching bones bad back,and co ordination a bit off,good job we have plenty of glasses. He had another BMB after six months as no longer shows in blood or urine,and its gone from 0.00 myeloma cells to 10 percent in BM. Not good news,thought he might get few years free,but 6 months is nothing.
We did get to France ,then a weeks cruise,then NZ over Christmas for 5weeks.so we did more than most.

Look after yourself and think of the first year as a learning curve.Love Eve

[eveParticipant]

Thanks Mavis and Babs

I have seen what they offer at Cancer Club plus Hospic,I have all ways thought it was for the patient not carer.
If I tried to get Slim to go he would not want to know,stubborn is his middle name.

Thank you Mavis I know are believes are different,but I do have a lot of respect for people who can hold there faith, with all that is happening to them. Love Eve

[eveParticipant]

Hi Maureen

You are learning fast,keep you eyes open only way to get good care.

Sorry you are so tired have you tried catnapping I use to come home from hospital take phone of hook and go straight to bed, before that the phone rang just as I was dropping off,I cannot repeat what I said to who ever it was.

You do need to recharge your batteries 24hours sleep!!! love Eve

[eveParticipant]

Hi Dai

The way they work it you begin with Zometer once a month,but it becomes less effect as time progresses,by the time you haveSCT or remission you attend hospital every 2 months so they fit Zometer in with your hospital regime Eve

[eveParticipant]

Hi sue

Only do it when your ready!!

Matty's ashers have not been scatted yet and it,s coming up to a year.
They have been remon
Ved from the thing from the undertakers,my daughter bought a beutiful globe,I told her if she gets burgled that's the first thing they would take,the family are. not ready and have not found a resting place for him .

They will eventually .Love

[eveParticipant]

Rebecca

I think the person who told you that was talking about all cancers,
For example myeloma if caught early there is less damage to bones nothing to do with age,but a younger person is fitter and healthy than a 70. Year old.

My husband is 69 this year used to be very fit ,so was able to have SCT but at his age will not be offered another I guess!!!
Bones weaken with age so when Myeloma causes extra damage the outlook is poor compared to a younger person,So I would agree with the others the younger person has a better out look..Eve

[eveParticipant]

Hi Wendy

Loved your blog;-) 😀 🙂 😎

Keep going ,I admire the way you keep going.Love Eve

[eveParticipant]

Hi Andy

The surgery should help with pain so bring it on.
Thanks for news on Keith,funny we never met,but you do find yourself wondering are people alright 🙂

You have been through an awfull lot of treatment s,I have alittle in sight to how you feel,I hope a Donna comes forward soon better than a doña as in one of my post to you:-P

I blame I pad for mistakes as it predict s words,Tom just thinks I am on the G&T .

I know what you mean by chemo brain,alas SlimsHas carried on after chemo stopped,lets hope that's all it is.Love Eve

[eveParticipant]

Hi Dai

That is sound advice8-) 🙂

We have just had a problem and rang up Mac Millan . We were both amazed how much they helped us,and you know me,it takes a lot to please me. Lol

Slim rang because mu daughter and friends asked why we were not claiming VAT off are new vehicle ,truthfully I did not know we could.!!

Any way we rang Mac for advice,well Slim did as I am deaf as a doorpost. They asked all sought s of question s,about Slim and Myself,the next day all forms in post and they questioned why I was not claiming AA as I have long standing illness plus Since SLim had remission my health has got a lot worse,doctor daughters are alway,s telling me I am not looking after myself.

The out come is we are claiming VAT,and now looking at my health issues,I am no spring chicken!!!Love Eve

[eveParticipant]

Hi Ozzy

Would like to know more,as when I approached the subject of Velcade again it was. not recieved very well. I just think Slim did well on Velcade,and he is starting to use options up quickly without much remission or in the case of CDT,it was in affective.

At the moment my feelings are that I am angry the way our questions were answered,or should I say not answered!!!!

Any thing you can tell me,like is it a trial??? What hospital are you under,how much remission between SCT???
Would be grateful for some info.Eve

[eveParticipant]

Hi Mohammad

My husbands Amitriptyine was increased from 5 m to 25 m.by consultant in Kings Hospital London for PN,see consultant!!!!

Also I used a coco based buttermilk cream which I massaged his feet and legs,I still do this as it helps circulation plus helps with dry skin.
Eve

[eveParticipant]

Hi Gill

Two steps forward ,one step back, you are taking little steps!:-)

I cannot help you with the grief of Stephen.but grief of anyone takes time and it has to be done individually .
My daughter and I talk about Matty her son,my first grandchild all the time,some times laughing,some times tears. 16 is no age to die.

I hope you find some peace.Love Eve

[eveParticipant]

Thanks again for everyone's good wishers,

We go to see consultant next Friday,for more results,that they have known the results of for over. 2 weeks,never mind about Slim he,s just the patient!!!

At first we jumped from positive to negative ,now just preparing for more treatment ,Slim more positive,one because he has the mentality of a commando marine,,so all those years are seeming to pay.,I take courage from his believes .
He is a quiet man who does not say much,but as he would say,he does not have to,he knows he can rely on me.LOL.

Starting to make plans for the summer,as Andy says every day is a gift,so we have sold our large Motorhome have a small one ordered,it means we can use it easier.

Maureen,counselling woks for some people,the thing that puts me off it. Is I know two people who are counsellor s ,there heart is most properly in the right place,but they have no idea about the person or the problems,
They seem to follow a script of how that person is going to feel.
So it's not for me!!! I am considering Riki (think spelt that way) have heard people say they do not know how it works,but they feel relaxed after it.

I do hope Ian picks up soon,it has been a long time Love Eve

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