Maureen, good luck with the Carflizomib research, let us know how you both get on x

Rebecca, thanks so much for your comments, they were exactly what I needed to hear!

Take care everyone x

Hi Maureen, good luck to you and Ian, I really hope you get some good news and thatcher radiotherapy is an option.

Rebecca, thank you for your feedback. Sounds like you and I are/we’re in a similar situation. Although, I am quickly learning that with Myeloma, no one is the same!! Did you have to dialysis during your SCT or did you just manage to…[Read more]

Hi Maureen, how poor is poor? I was diagnosed back in February after a routine blood test showed unexplained kidney failure. At one point I got down as low as an eGFR of 7.

Yesterday I started my 6th cycle of velcade/dex (no thalidomide due to the kidney function). My kidney function has slowly worked its way up to 23. Right now the plan is to…[Read more]