[evostickParticipant]

Maureen, good luck with the Carflizomib research, let us know how you both get on x

Rebecca, thanks so much for your comments, they were exactly what I needed to hear!

 

Take care everyone x

[evostickParticipant]

Hi Maureen, good luck to you and Ian, I really hope you get some good news and thatcher radiotherapy is an option.

Rebecca, thank you for your feedback. Sounds like you and I are/we’re in a similar situation. Although, I am quickly learning that with Myeloma, no one is the same!! Did you have to dialysis during your SCT or did you just manage to maintain your 20-23?

It seems mad but I am more fearful of dialysis than I am of cancer! I’m only 40 and I’m rubbish at making lifestyle comprises so the thought of being plugged into a dialysis machine 3 times a week forever, scares the living hell of me!

Eve

[evostickParticipant]

Hi Maureen, how poor is poor? I was diagnosed back in February after a routine blood test showed unexplained kidney failure. At one point I got down as low as an eGFR of 7.

Yesterday I started my 6th cycle of velcade/dex (no thalidomide due to the kidney function). My kidney function has slowly worked its way up to 23. Right now the plan is to finish this cycle and start prep for a SCT, aiming to go in to the QE at the beginning of November.

I have managed to avoid dialysis throughout but I have been told that the high dose of chemo is likely to have a negative effect on my kidneys and there is some talk of putting me on dialysis for my hospital stay. All this is dependent on whether my kidneys continue to improve (and by how much) in the short period between the 6th cycle ending and the SCT.

Sending you and your husband my best wishes and hoping for positive news

Eve

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