Thanks to everyone who has responded. It is so horrible that there are so many of us going through the same thing. I have pulled myself together and things are OK at the moment. He's finished his CDT treatment and has been randomised straight for SCT with a good partial response to the chemo. He starts the harvesting in a couple of weeks. Ironically he is looking pretty good at the moment. He had all 8 vertebrae cemented two months ago and is off crutches and looking much straighter. He has lost a lot of weight already partly due to nausea on the chemo and partly due to the diet the local cancer nutritionist suggested. The dietician has reversed the no dairy, lots of nuts diet and recommended high fat everything which is making a difference. Hoping to get a bit more weight on in preparation for the STC. His personality is back now that he is off so much pain relief which is lovely for the children as 'Daddy has come back'. We are learning – one step at a time. We have made some decisions about work. And we are looking forward to a good family Christmas together before things get a bit more stressful.
