Hi Vicki

Hope Colin's back is feeling better, so pleased to hear about the funding, any news on when everything gets back on track??

Pete went for his monthly consultation today, they are now concerned about his swelling ankles and legs because the ECG tests have shown a possible 'dip in his heart beat'. OMG, we were just about to book a…[Read more]

Dear Gill

I am so sorry to hear your news. I have followed your posts and found it very painful to read of Stephen's death today – it really came as an awful shock when I logged onto the Myeloma site.

Please take care Gill.

Lots of love

Ann and Pete

xx

Hello Mavis

My husband Peter who is on his 5th cycle of CDT also experienced this problem. He tried Senokots etc etc. The consultant gave him LAXIDO on one of his monthly prescriptions, an orange powder drink. Certainly did the trick and you can buy it from a pharmacy without prescription. Costs about £7, but what the hey!!! as long as it does…[Read more]

Hi Wendy

Wow,good on you. My husband is due for SCT in November,hopefully – and to read your post – really does give us both a lift!!

Take care

Ann and Pete

xx

Hi Vicki and Colin

Just caught up with your thread, I am so sorry to hear your news. You really have been through the mill in the last few weeks, but you still sound strong and thankfully there is the prelixafor, I do hope you get the funding. How long will it take???

I honestly thought that Colin would have been well into treatment by now…[Read more]

Hi David

You were so supportive to Pete and I when we first joined the MM site and so needless to say our thoughts and many good wishes are with you!

Take care David

Love Ann and Pete
x

Hi Vicki and Colin

Good to hear your news, lets hope things do start moving now. Hope you are both keeping as well as can be expected. Good luck for the next few weeks and here is to the 24th September!!!!

Pete visited consultant yesterday, they are pleased with all his blood counts, still won't give a date for SCT, but said should…[Read more]

Hi Vicki and Colin

How are you both? Any more news on what is happening with Colins progression to SCT and the drug funding?? How is he generally and how are you coping? How nice that you both enjoyed your mom's birthday.

Do you have to automatically come off CDT prior to SCT? Would Colin have to go back on it if the SCT is further…[Read more]

Hi Vicki and Colin

How are you both!! Silly question I know, but I do hope that you are both bearing up.

I obviously cannot offer any advice, because we have'nt gone through it yet, but Vicki, you know we are thinking of you both!!!

Pete is really good at the moment,and so at times I do forget what lies ahead. I am dreading…[Read more]

Hello Teresa

Our thoughts are with you.

Take care and God Bless

Ann and Pete

x

Hi Vicki and Colin

Thinking of you both!! Take care and best wishes. Keep in touch.

Love Ann and Pete

xx

Hi Vicki and Colin

Oh, so sorry for you both, after preparing yourselves so thoroughly as well – you did make me laugh about your reaction to the cleaning chemicals, poor you!!! Thats all you needed!!! Hope you are feeling better.

It must have been so upsetting at the hospital, really do feel for you both!!! Excuse my ignorance – but what…[Read more]

Hi Vicki

I really hope everything goes ok for Colin. It all has happened so quickly – or so it seems. I feel for you so much!! I will be going through the same thing with Pete in a few months time. At least you will be able to give me good advice!!!!

We have just come back from 7 days in Menorca – not good!! On the third day of our…[Read more]

Hi Tom

So pleased to hear your good news, missed your original post!!!

Take care

Ann and Pete
x

Hi Vicki and Colin

Just wondered how you both were. Are you reading Penny's blog?

Our insurance company has refused to pay out for our cancelled holiday to Turkey.

They are saying that because Pete first went to the Doctors in December, then booked the holiday in January, he is not covered. When he first visited the Doctor in December,…[Read more]

Hi Helen

Thank you so much for your advice, Pete got the insurance , with the company you recommended, for a fifth of the price on all previous quotes.

So we are off to Menorca in 2 weeks time, cannot wait!!!

Thanks again Helen

Ann
xx

David, Good Luck for Friday

You have helped so many people on this site and made the journey so much easier!!

Best wishes

Ann and Pete

xx

Hi Vicki

Just read through all the comments about SCT, how helpful and supportive, it must have made both you and Colin feel so much brighter!

How are you both?

Good news here, Pete had his heart tests yesterday, no problems at all, what a relief, at least only got the myeloma to worry about!!!! That surely is enough on its own. The…[Read more]

Hi David

Hope you are well. Just a quick one. Pete has been told he can fly, but after a few calls this afternoon to Insurance Brokers (named in Myeloma information), they are all quoting really high prices. I think I remember you mentioning something about holiday insurance some time ago, or was it Tom??

Anyway, we knew it would be…[Read more]

Thanks Vicki

Good luck for tomorrow, let us know

Ann and Pete

xx