Hi Vicki

Just a quick hello! How is Colin …. and how are you?

No change here, other than Pete has developed quite a 'firm mass' – about 2" wide, on his stomach, he says the symptons are probably like a 'hernia'. No pain, but uncomfortable -he has never had a big tummy, so it is getting him down! Any ideas?? I know constipation is a side…[Read more]

Hello Teresa

I just wanted to see how you are. How is Peter? .

Really hope all is well in Canada and that you are getting better weather over there than we are here!

Take care and lots of good wishes

Love

Ann
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Hello Helen

Thank you so much for taking the time to reply, your information is so helpful. The feedback on this site is amazing!

So pleased you had a good holiday.

Keep well and many best wishes

Love

Ann

Thanks for that Vicki, I told Pete I was buying him some pineapple tomorrow. He said, I don't like pineapple! I replied, well if you can't taste anything you won't know you are eating it, will you!!!! LOL, men eh!!!

Really good info Vicki

Talk soon and best wishes to you both

Ann

xxx

Hi Vicki and Colin

Lovely to hear from you and what great encouraging news for Colin! As you say, after he has been so poorly during this cycle, it must have been such a relief for both of you. Colin must be on his 9th cycle now?, Pete will start cycle 3(CDT plus monthly bone drip at the end of June) and so we have still got a long way to go.…[Read more]

Hi Vicki

Oh so nice to hear from you! I said to Pete, I thought something not right as you had'nt posted recently. So sorry to hear that Colin has not been well! As you say, it is a blooming roller coaster, every day is so different. One day you feel optimistic, the next day you come down with a big bump!!

Many thanks for the info on…[Read more]

Hello everyone

Just a quick one! Has anyone experienced loss of taste buds with CDT. Pete literally cannot taste anything! We have read the leaflets accompanying the tablets but cannot seem to find anything relating to it.

Thanks and best wishes to you all

Ann
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Hi Vicki

How did Colin get on today with the consultant?

Love Ann
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Hi Vicki and Colin

Thanks for your post, sorry to hear Colin was not feeling too well! I do hope that he is feeling abit brighter!!

Your info was great, really helps. As I said previously, you are in abit of a daze when you are with the consultant and don't always ask the questions that you intended too!

Pete went for his radiotherapy…[Read more]

Hi Dai

First of all, thank you for your post to Pete and I, very informative, and I really do appreciate you taking the time to reply.

Really pleased that you are a 'happy chappy' today!!!

Take care

Best wishes

Ann and Pete

Hi Vicki

Thanks for your reply. It is all so confusing, is'nt it??, all these names. As usual we did'nt ask all that we wanted to, but I think it all goes a bit of a blur, the minute you walk into the consulting room. All they said about Pete's blood was that it was good, but they had'nt got the light chain blood results back yet!!!

You…[Read more]

Hi Vicki, Teresa and all

Pete went for his consultation today. Still confused!! but at least the news was a bit more encouraging. The MRI showed up a mass of myeloma on his spine (we actually saw the scan). This finally confirms the cause of the back and rib pain. The consultant was confident that with radiotherapy (Pete goes back tomorrow for…[Read more]

Hi Vicki and Teresa

We did'nt have a good day yesterday either!! Pete really felt rough, the pain is still going around his body, each day, different spot!! He is now suffering with chest pains (has got a spray for under his tongue) but has to see a cardiologist next week! I hope to god it is connected to myleoma and not something else!!! He…[Read more]

Thank you so much David

As usual, you are so very helpful and thoughtful!

Best wishes

Love

Ann

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Hi Vicki

Yes another week!! – Cannot believe Pete is only just finishing week 3 of his first cycle – it feels like an eternity already and I do realise that he has got an awful long road ahead! (Colin is on his 7th cycle) – it does get better does'nt it????- I think I know the answer to that one!

One question though, you say Colin is on his…[Read more]

Hi Teresa

Not too bad, but dreading Tuesday, Pete goes back to the Hermatology Clinic for his first appointment since starting the medication. He will start week 4 of the first cycle this coming Saturday. Also he will hear the results of the MRI, I keep thinking, please don't find anything else!!! Don't really know what to expect. Just a…[Read more]

Hi Vicki

Hope you and Colin are well. Thanks for the last post, really good and positive. I did say to Pete that I was going to give the forum a break, just felt I was being negative all the time and not being able to help other people because Pete so newly diagnosed. Anyway, after reading your post and god bless, Antoinette – only 39 years…[Read more]

Hello Teresa

Just looked up your previous posts and now realise what you are going through and what your circumstances are!! Bless you!! – that you took the time to acknowledge my comments and offer really good advice.

You sound so brave. You did make me laugh however about the swear words!! – I thought it was only me, I think I have…[Read more]

Hi Teresa

Thank you for your kind comments. I am having one of those nights!! Feel so useless and very sad – but being on the forum does give you a lift – and you don't feel that you are so alone!!!!

I honestly thought that with 2 weeks medication- CDT, that Pete would have started to feel some ease from his pain, but it has not happened,…[Read more]

Hi Vicki

Things have got worse tonight, got home from work, Pete said he bent over and felt a searing pain in his spine, finding it difficult to walk. He had something to eat and went to bed at 7.30. He actually had a bottle of lager, I think he was hoping it would ease the pain, or at least relax him.

Had a horrid night last night, we…[Read more]