Hi Dean,
I got on fine with the Dara, on the first occasion I was at the clinic for over 4 hours just in case of a reaction. I think the wait depends on the clinic. I was told other patients on similar treatment have not had issues, so that was reassuring however, we are all different and a percentage of patients could have a reaction so the waiting is just for our own safety. The observation time on second occasion was much shorter and after that no more waiting.
I was also told the subcutaneous injection form of Dara which we now have is better from a side effect standpoint compared to the previous drip method. We also have to take anti histamine, and the Dex steroid an hour before which also helps with reactions, although Dex is also part of our myeloma treatment so it’s like a 2 for 1.
I think the Velcade does affect me in terms of my hands and feet get warm, not quite burning or pins and needles which is neuropathy, something to watch.
Best of luck for Monday, from the information I have seen this treatment regime works well for both newly diagnosed and those who have relapsed so that is very encouraging.
George
