Min, i hope that you are ok, please take care of yourself, if you need to talk you know where we are
Gina xxxx

mum hates the hospital Bridget. Dr baden is very good but has admitted that they are running out of options. This is the last chance the revlimid.mum has already said that if this doesnt work she isnt having anymore treatment. The nodules they have said if mum was an healthy lady they would investigate,but with mums other issues they arent doing…[Read more]

Thats great news Bridget,i hope everything goes to plan and that your pain will soon go away. Please keep us posted on how you are doing.
Gina xxxx

Bridget i hope that you are starting to feel a little better, and i hope things start to get better for you. Please look after yourself
Gina xxxx

Min, i am heartbroken for you, this is such a shock! its awful but when people have passed we have been sort of ready for it. But not this. I am so sorry i just dont know what to say to you.I am here if you need to chat and i am thinking you and your family at this very sad time.
Gina xxxx

Thank you to you all for your replies. We know it will get to the point where there wont be any options but are hoping that they can give her the mdt again. although it only got her pp to 19 she still had 12 months without treatment till numbers started rising again. You never know something new may come along in the meantime. I hope you are all…[Read more]

Hi Angela, im so sorry about your dad, it is my mum who has MM She had the chemo firstly and did ok with it, she had 12 months partial remission and then it cam back.Mum started on velcade but only had 2 lots before she became ill.She firstly got an infection and then fluid on her lungs.When mum had a ecg and echo before starting velcade she was…[Read more]

Im glad you are going in, i have learnt from experience with my mum never to leave or put it off.
Hopefully like you said they can give you something that will make you feel better.
I feel for Janet as i know how hard it is to stand by and see the one you love and care for in such pain.
Fingers crossed for you Dai
Gina xx

Hiya Min,
I know how you feel when the patient wont get help when needed. Mum has done this twice and has nearly died in the process. This last time after 2 chest dtains and a sealing procedure mum has said in future as soon as she is ill she is going to the doctors. What a relief that is for us.
I hope that Peter is getting the treatment he…[Read more]

Hiya Dai, I hope that you do get sorted and go and enjoy your holiday,it will be just what you need.
You are doing the right thing by getting checked because other wise you would only get worse, and then they would probably keep you in.
I hope you are ok and have a great holiday, you deserve it
Gina xxxx

Sally i am glad your dad is going to be starting treatment, its always such a relief as you just want them to be better again.
Please let us know how everything goes and keep us posted.
Take care
Gina xx

Thank you ladies its much appreciated that you are thinking of my mum. I have been on and replied to Gayes post, i didnt really want to put anything as i know how upset everyone was upset on hearing about Gaye passing away, just has i was i think it hits us hard and brings it home on how awful this disease is and how quick it takes hold.

Mum at…[Read more]

How sad i was to find this post when i came on today. What an inspiration Gaye was to us all and what a courageous and brave lady.
I hope that she is at peace. I will miss her posts and it has made me feel so sad .
You will be missed by us all Gay RIP lovely lady
Gina
xxxx

Sarah, it sounds like Gordon was loved by many. Im glad that he had a good turnout. I hope you are ok and make sure you look after yourself
Gina xx

Min you shout loud, we have learnt to do it and it works. when mum is at home and needs bloods the nurse from our surgery comes to the house to do it now. So it can be done.
I really hope things get sorted for you and peter and they start to listen.
You take care and keep us updated.
Gina xxxx

Hi Dai, your posts always make me stop and think. I admit i do come on here and its mainly when things are going wrong for mum and i need the support on here from you lovely people that understand.
My first port of call in a morning used to be facebook but now its here, its like picking up an newspaper and reading what is going on in your lives,…[Read more]

Bridget you swear as much as you like. You know your own body and like you said its a good job that you asked them to check. I really hope things start to go right for you soon, its just not fair.
You take care
Gina xx