[gina45Participant]

Hi Mary, hope you are ok. Am sending lots of positive thoughts to you on doing your skydive,im sure you will love it.
Take care
Gina xx

[gina45Participant]

Dear Sarah, i am so sorry for your loss, i cannot even imagine how devastated you are.
I will be thinking of you and your family at this sad time
Gina xxxx

[gina45Participant]

Well i hope they get it sorted Dai and you are soon on the road to recovery.
Thnking of you
Gina xx

[gina45Participant]

Sorry we missed your post Lara. Its my mum that has myeloma and its hard to see someone you love go through this disease. I cant really help with your question but i know there are lots of lovely people on here that will be able to give you some good advice.
I just want to say hello and will be thinking about you and your dad
Gina xx

[gina45Participant]

Hi Gill, hopefully mum will start to feel better soon, it is only her 2nd day of velcade so early days. She has that many drugs that she is rattling. The gp said to half her blood pressure tablet and if blood pressure stays low then to ring him back. He said that the reason he is keeping her on them is it protects her against heart disease and stroke etc. So we will see.
On the positive side mum says she feels a little better today so fingers crossed.
Thank you for your reply it is much appreciated.
Gina xx

[gina45Participant]

Sounds like its been a long rocky road Dai, i hope that you are feeling ok now and here is to many more years and many more miles 🙂 Gina xx

[gina45Participant]

Hi Keith, its good to hear from you and i do hope you start to feel better very soon, please keep us updated on how you are doing
You take care
Gina xx

[gina45Participant]

Hi eve, yes my mum spent a week in hospital and she had a water infection which turned into a blood infection, she had her bloods checked today and they are a bit lower. she is breathless(her words that walking up the stairs feels like she has walked mt everest) she has lost lots of weight. the consultant said that the antin inflammitories and reflux tablets were something to do with the velcade,im not sure. I will have to ask. The consultant did say any problems take her to gp or hospital But our main concern is the blood pressure tablets.our gps was shut today so i cant speak to them till morning. But will be doing that as soon as they open. Thank you for your advice it is most appreciated. I hope we can get it sorted x

[gina45Participant]

Hi min, the consultant knows about it but im not sure where it all stands with the gp. I will speak to the doctor tomorrow and on monday let the consultant know. Hopefully we will have more answers then.
Thank you again for your advice it is most appreciated x

[gina45Participant]

Im so sorry that Gordon is not doing well, i will be thinking of you both god bless you xx

[gina45Participant]

Good luck Jet and Keith xxxx

[gina45Participant]

Thank you all again for your support. Much happier today. Mum still gets breathless and is tired but she is actually eating proper food today,so we are so relieved.Here is hoping that this treatment will be successful and bring them paraprotiens dow.
Thank you all again
Gina xx

[gina45Participant]

Thank you so much for your replies. Mum started her first treatment today, she was given an anti sickness drug which more or less worked straight away. She was then given fluids before the velcade. Mum was also given tablets anti inflammitories, something for acid reflux,. She was also given an injection in the tummy. The nurse who looked after her (sam) was a lovely man who made mum feel at ease and made her laugh. We were there for 3 hours but when we went home mum was very tired but glad that she wasnt feeling sick. The nurse also gave her some drinks with vitamins in them. I spoke to her before and she had managed to eat some proper food and was so relieved about that as she hasnt been able to eat anything and keep it down.
So we feel a little better today. We go back thursday for her next lot.
There is 6 of us one of my brothers lives with mum and helps at home and me and my sister are really her carers who do all the hospital, shop runs etc.We are glad that we made a fuss and are relieved treatment has started.
again thank you so much for your support and advice it is always much appreciated
Gina xx

[gina45Participant]

Hi Dai, i hope you are starting to feel well in yourself, i cannot even imagine what you people with mm have to go through each day of your lives. I am a carer and can see what my mum is going through but its still not the same as living with it. Its great to hear your updates you are always so upbeat. So keep your chin up and i hope things are get tbetter for you
Take care
Gina x

[gina45Participant]

I know i have been thinking to do that. I think because my sister complained to PALS today they must have said something, also my mums gp has spoken to them.Hopefully when she starts treatment on monday she will start to feel better hopefully. Thank you for your reply xx

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