Thank you for your kind messages. Funeral Friday…life is difficult.

Jaqui

Iam not sure if I am posting this message in the right place, but just wanted to finalise Glenn's postings. I know that he has not been on here for some time to post messages but has certainly kept up to date with information and blogs. Sadly Glenns fight ended on Monday 21/1 at 5.15 p.m. We had been told that he had an aggressive form of myeloma…[Read more]

Thanks Shirl and Tom.I am a little apprehensive but know that it is necessary and hope to get good results from it. I am also unbelievably tired at the moment and no amount of sleep refreshes me…no energy either, but suppose that is down to the chemo along with all of the other meds and morphine that I am taking. Can't wait for this bit to be…[Read more]

Hi Phil
Thank you for your positive thoughts, they are really welcome as I have only just completed my first cycle and Jaqui and I are still coming to terms with, not just the illness, but the changes it has made to our day to day living.
I am hoping to have SCT later this year, if the chemotherapy allows.
Would it be possible for you to tell…[Read more]

Hello Dai
So sorry to hear about your latest set back.
Sometimes it is difficult to find the right words to describe our own individual journey.
I have, however, found that heroes, such as you, with your strength of mind and positive attitude, help others, such as myself, dig deep inside to continue the fight in our own individual…[Read more]

Hi Marie
Thank you for your wonderful message.
It has given Jaqui and I a lot on encouragement going forward.
It sounds like your journey has been a similar one, to which we are embarking on at the moment.
I, however, at present have been luckier than Stephen and have not suffered from a compressed spine.
I have though been told that my…[Read more]

Hi Paul
Thank you for your supportive message.
I am also keeping a daily diary recording how I feel with each different type of medication I am on.
I find, for me this is one of the best ways forward, knowing what to expect in the days ahead.
For example, as you, when I am on the steroids, even though I feel physically stronger, my fiancee…[Read more]

Hi Tom, nice to meet you.
I am also on Zometa as I have quite a lot of skeletal issues.
Can I ask are you experiencing any pain with the Zometa?
The reason I ask this, is I am getting a lot of pain in the lower back area.
The medical staff have said this could be a combination of the chemo I am recieving, which is PAD, as unfortunately when I…[Read more]

Hi Heather, thank you for your kind comments, they have given me more confidence, as there are times when I think, am I ever going to walk again? My partner and I had our first wheelchair day out the other day, I am sure we will get used to it, but I found it very uncomfortable mentally, as I have always been actively fit and full of energy.
Can…[Read more]

Thank you for you support Mavis. I am back at Clatterbridge on the 18th to find out the results of the radiotherapy on the tumour. Last night was a bad night, I had a full dose of Velcade yesterday, when I came home I fell asleep and woke up shivering and feeling quite poorly. Apparently I was talking absolute jibberish (some might say, nothing…[Read more]

Hi Eve
Sorry I have not replied for a couple of days, not been too good unfortunately, seem to be struggling with the Velcade at the moment.
Congratulations regarding yours and Slims remission news, gives me, and I am sure many others more incentive and confidence going forward.
In answer to your queston about PAD.
PAD is Bortezomib (Velcade),…[Read more]