glynnis

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  • #137896

    glynnis
    Participant

    Hi Mike,

     

    thank you so much for your reply it has made me feel better especially after a long day at hospital again and the news was my husband has not got another fracture just they suspect muscle pain.  So maybe we can look up now Mike as I have told him about your email as he has been sure that he will not be long for this world.  I do have friends and we have a son who come when he can but does live 4 hours away.  I suppose things happen of a night time and it always seems worse.  It would be lovely to go for a walk again especially if weather stays improving.  I must say the hospice have been wonderful and I have really put John first so will get in touch with them for some support again.  Thanks so much for reminding me there is a life with Myeloma as it can be so easy to forgot.  Good luck to you to.

     

    regards

     

    Glynnis

     

     

    #137883

    glynnis
    Participant

    my husband has had mm for 8 months 2 spinal fractures and collapse on the lower spine.  He has had 7 months of chemo injections, thalidaminde, steroids and zonate drip.  6 weeks ago he had kyphoplasty and he spine is horrendous he has already spent 6 weeks in hospice to control the pain but the side effects from the treatment are horrendous.  He was a very healthy 70 year old walking at least 20 miles a week with our group and lots of gardening has always played sport and look very young.  He is now a shadow so weak and thin also bent over has anyone suffered like this and will there be a light at the tunnel.  would like to hear from anyone that may help us as I find it so difficult to see him in so much pain.  Apparently his bloods had plattooed and because his side effects are so bad he is coming off the last month.  Sorry to go on as I know it is horrible for everyone but I am also finding it difficult to cope as he has not been able to sit comfortable for 8 months he has a special chair  but that is no comfort and laying is also difficult.  I actually feel very alone as he is trying to be so strong, but is so weak and thin.

    maybe someone can help

    thanks

     

    Glynnis

     

     

     

     

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