[graemeandrewarthaParticipant]

Mystery solved.  I have chickenpox.  Call from hospital late last night from duty doctor confirming this. Another visit to the hospital for a prescription.

Regards

[graemeandrewarthaParticipant]

Hi Helen

Thanks for the message. Nurse specialist has left. Rang hospital and got called in asap. No clue what it is.  Had swabs done and even medical photos taken. Now off thalidomide for 10 days just in case. Will let you know results. Regards. Graeme

[graemeandrewarthaParticipant]

Good day Stanley-1960

Thank you for your post.

Apart from my leg we seem to be a matched pair. The consultant Orthopaedic surgeon who first spotted this has said that due to the size of the hole in leg/pelvis he would not even consider trying to fill it. If it was to be done then I would have to go to Oxford for the specialist hospital. He is worried about the possible down side of attempting it so I shall wait and see over the next few months.

Apart from the first week when everything went wrong I have been feeling good. Need a crutch permanently on my right arm to take the weight but managing to get around and do things. Retiring and getting an automatic car were 2 of the best decisions so I am lucky there. Not sure what it would be like if I still had to work so I do feel for others.

All the best

graeme

[graemeandrewarthaParticipant]

Hi Sara

I had symptoms for over a year. Always after driving. Get out of the car and I would ache around the top of the leg area. Assumed that it was muscle,  walked around for a few minutes then it would disappear so carried on thinking it was a minor strain. No point in going to the doctor as it always went away. It was only later when it did not go away that I started to see my GP.

[graemeandrewarthaParticipant]

Hi Sara

Interesting question. I was mis-diagnosed for a while until I actually got into the main hospital where when it was recognised. Then I couldn’t fault the treatment. I had never heard of it just thinking it was a muscle strain! !!.

1) No blood’s prior to main hospital visit then specific bloods requested.

2) Not sure about the calcium levels.

3) Muscle pain intermittent for a number of months then bang intense pain top of left leg hence start of the doctors visit.

As can be seen from my original introduction Myeloma was not on their original thoughts. Myeloma can be anywhere, leg for initial consultation then after tests all the other places found. But I only get leg pains still.

Not sure if this is what you needed but as very few doctors see Myeloma it is one to be considered.

Regards.

Graeme

 

[graemeandrewarthaParticipant]

Hi Tom and thanks for your interesting reply.

It is good to know the good and possible bad side of Myeloma and treatment.

Can I ask, when you were in remission how did you know it had come back. Same signs as before or something “not right” or other.

The resting I have to agree with. Did not want to but after a lie down I do feel better.

2nd cycle for me and just started the Thalidomide so waiting to see what effect if any that will have.

Regards

Graeme

[graemeandrewarthaParticipant]

Hi and many thanks for your reply. As my introduction said I am at the start of this so it is encouraging to read all the news and good reports. I will be dipping into the forum on a regular basis. Sorry forgot age 67, in August. Regards

• This reply was modified 10 years ago by  graemeandrewartha.
• This reply was modified 10 years ago by  graemeandrewartha.

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