helenm

  • helenm replied to the topic Timescales in the forum Treatment 6 years, 1 month ago

    He got home the day before Good Friday – having spent 2 and a half weeks in hospital.  Very tired but we are taking things easy.  He has a really bad cough at the moment and has been given antibiotics which seemed to have helped.

    Helen

  • helenm replied to the topic Timescales in the forum Treatment 6 years, 1 month ago

    Another update – Dave was admitted last Monday to the Beatson, Glasgow.  He had his Chemo Tuesday and his stem cells transplanted Wed and Thursday.  He also had to have 2 blood transfusions as he was anaemic.  There was a blip on Friday when he had arrhythmia and ended up in intensive care for about 8 hours.   Once they had stabilised him and moni…[Read more]

  • Sorry to hear about your setback.  I can only sympathise – my husband has had a roller coaster ride since having his stem cell harvested in September.  I honestly thought his transplant would be done and dusted by Christmas.  Instead he has had 5 weeks in hospital resulting from infection from hickman line, a minor heart episode and surgery to pi…[Read more]

  • helenm replied to the topic Timescales in the forum Treatment 6 years, 4 months ago

    Just a wee update – since posting 3 months ago when he had an infection in his hickman line – he ended up in hospital for 2 weeks while they tried to get the infection under control – they also had to take his line out.  He got home for about 6 hours and then promptly had a heart episode and ended back in hospital for a further 3 weeks.  As if t…[Read more]

  • Bit of a setback.  He has an infection in his Hickman line. Is in hospital being pumped with all antibiotics known to man (well that is how it feels!).  Has had to have it out and will be reinserted later.  Has appointment in Glasgow 3rd oct to see consultant. Hopefully a date ..   Not a good journey. But hey such is life …

     

  • helenm replied to the topic Timescales in the forum Treatment 6 years, 7 months ago

    Thanks – he had his harvest last week, however, this week he went into our hospital yesterday  to get his hickman line cleaned and it turns out he has an infection – so they admitted him!

    Hopefully he will be OK and out Monday.

    He will have to stay in Glasgow when he has his transplant as it is too far for him to go daily.

    Good luck with…[Read more]

  • Well – Dave has had his stem cells harvested this week.  Took 3 days as we had a blip on the Tuesday when his white cell count was down.  They gave him an extra injection (costing £5000) and that did the trick – blood count went back up .  We were put up at the Pond hotel (Dave had his accommodation and breakfast paid for – I had my acc…[Read more]

  • helenm replied to the topic Timescales in the forum Treatment 6 years, 8 months ago

    Thanks  – he is having his hickman line put in tomorrow so at least things are moving.

     

    Helen

  • helenm started the topic Timescales in the forum Treatment 6 years, 8 months ago

    Hi all – We are going up to Glasgow Monday for hubby to start stem cell harvest (allocating 3 days)- what sort of timescales are we looking at between having the harvest and going in to have high dose chemo and cells transplanted?

    Thanks

     

    Helen

  • Thank you so much for the reply and reassurance.  Hopefully Dave will start to feel better in the not too distant future.  I have had a few offers of rooms to stay nearby from internet friends on a site I use.   I will keep the forum updated on Dave’s journey.

    Helen

     

  • Thanks for the info – we now have an appointment next Tuesday at Glasgow to discuss treatment.  I had to laugh – Dave had to go and pick up a letter from the post office because there was £2 to pay on it.  The hospital had only not put any postage on the appointment letter.  They had also sent us another copy of the booklet explaining tre…[Read more]

  • Thanks for the info – we now have an appointment next Thursday at Glasgow to discuss treatment.  I had to laugh – Dave had to go and pick up a letter from the post office because there was £2 to pay on it.  The hospital had only not put any postage on the appointment letter.  They had also sent us another copy of the booklet explaining tre…[Read more]

  • My husband Dave was diagnosed with Myeloma 13 years ago at 54.  We were very lucky and he had 13 years of monitoring (hospital check ups every 3 months – with a few blips meaning 1 month check ups).  However, in the past 6 months Dave has gradually been getting worse with rib and back pain and the hospital decided he needed to start Chemo.  He is…[Read more]

  • helenm became a registered member 6 years, 10 months ago