[helenmParticipant]

Another wee update – he is 63 days post STC and is doing well. He is improving daily – he has an appointment at the hospital on Thursday so will see what they say. We have booked a week away next week to Northumberland in a cottage – first holiday for a year and a half as he was so ill last year we didn’t go anywhere. Hopefully there is light at the end of the tunnel.

Good luck to all others going through a STC or treatment for Myeloma.

Helen

[helenmParticipant]

He got home the day before Good Friday – having spent 2 and a half weeks in hospital.  Very tired but we are taking things easy.  He has a really bad cough at the moment and has been given antibiotics which seemed to have helped.

Helen

[helenmParticipant]

Another update – Dave was admitted last Monday to the Beatson, Glasgow.  He had his Chemo Tuesday and his stem cells transplanted Wed and Thursday.  He also had to have 2 blood transfusions as he was anaemic.  There was a blip on Friday when he had arrhythmia and ended up in intensive care for about 8 hours.   Once they had stabilised him and monitored him for a while they sent him back up to his room.  He is now neutropenic and has a slight infection.  He is actually feeling not too bad at the minute but realises he has to take things one day at a time.  He is bored as at the minute I am at work and only visiting at weekends as I need to keep time for when he is home and I can look after him.  Will keep you updated..

 

Helen

[helenmParticipant]

Sorry to hear about your setback.  I can only sympathise – my husband has had a roller coaster ride since having his stem cell harvested in September.  I honestly thought his transplant would be done and dusted by Christmas.  Instead he has had 5 weeks in hospital resulting from infection from hickman line, a minor heart episode and surgery to pin his right femur beginning of Dec.  Not sure what 2018 will bring.  Hope your stay in hospital goes well and you don’t feel too ill.

Helen

[helenmParticipant]

Just a wee update – since posting 3 months ago when he had an infection in his hickman line – he ended up in hospital for 2 weeks while they tried to get the infection under control – they also had to take his line out.  He got home for about 6 hours and then promptly had a heart episode and ended back in hospital for a further 3 weeks.  As if that wasn’t enough when he came out he had a CAT scan that showed a lesion in his right femur that was in imminent danger of breaking.  Of course by now he was also on blood thinning medication.  He had to stop taking that for 10 days before they could operate to pin his leg.  He had the op at beginning of Dec and is now well on the way to recovery (from this at least!).  He sees the consultant again at the end of Jan beginning Feb.  Hope 2018 is better than 2017!

Helen

 

[helenmParticipant]

Bit of a setback.  He has an infection in his Hickman line. Is in hospital being pumped with all antibiotics known to man (well that is how it feels!).  Has had to have it out and will be reinserted later.  Has appointment in Glasgow 3rd oct to see consultant. Hopefully a date ..   Not a good journey. But hey such is life …

 

[helenmParticipant]

Thanks – he had his harvest last week, however, this week he went into our hospital yesterday  to get his hickman line cleaned and it turns out he has an infection – so they admitted him!

Hopefully he will be OK and out Monday.

He will have to stay in Glasgow when he has his transplant as it is too far for him to go daily.

Good luck with yours.  He found the harvest draining – and it took 3 full days to get enough cells.

[helenmParticipant]

Well – Dave has had his stem cells harvested this week.  Took 3 days as we had a blip on the Tuesday when his white cell count was down.  They gave him an extra injection (costing £5000) and that did the trick – blood count went back up .  We were put up at the Pond hotel (Dave had his accommodation and breakfast paid for – I had my accommodation).  Just a waiting game now for a date to go in.   He is OK but very tired as those 3 days were quite draining!

[helenmParticipant]

Thanks  – he is having his hickman line put in tomorrow so at least things are moving.

 

Helen

[helenmParticipant]

Thank you so much for the reply and reassurance.  Hopefully Dave will start to feel better in the not too distant future.  I have had a few offers of rooms to stay nearby from internet friends on a site I use.   I will keep the forum updated on Dave’s journey.

Helen

 

[helenmParticipant]

Thanks for the info – we now have an appointment next Tuesday at Glasgow to discuss treatment.  I had to laugh – Dave had to go and pick up a letter from the post office because there was £2 to pay on it.  The hospital had only not put any postage on the appointment letter.  They had also sent us another copy of the booklet explaining treatment – we only got one a few weeks ago saying he had been referred.  So – they now owe us £2!  lol  I have just booked him patient transport to get him up there – it is one and half hours from us to hospital.  We are in Dumfries.  That was easy enough – they will pick Dave up from the house – I, however, have to get the bus!

Helen

 

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