hmj

  • Hi Bernard,

     

    Thank you for your reply to my post. Very happy to hear things are moving in the right direction and that treatment has put you in remission. My dad got 7years after the first transplant,aim for that and keep postive. Please take your time getting back to a bit more normality,it’s a huge knock on you body,allow yourself time to…[Read more]

  • Hi Gill,

     

    I have not been on here for a while so just read your post now, and I was sorry to read about your husband. I look forward to a day when everyone who is treated for this disease can be given a longer life, a cure even. Its such a varying disease, 4 years is not enough time. I hope that you are managing life ok, i hear that life…[Read more]

  • hmj replied to the topic Husband just diagnosed. in the forum Newcomers 9 years, 6 months ago

    Please do try to keep positive, my dad lived for 19 years after first diagnosis and this was in  1995 and treatment has now come so far so i hope that people can live longer and better lives with this disease. Its a worrying time for your husband and family, keep strong and keep talking

     

    best

    hmj

  • Hi Rhiannon,

    I lost my dad to MM in July. He was diagnosed at 44 and died aged 63, which was an amazing length of time, one which i hope other sufferers can follow. I grew up from age 12 with my dads illness and even then we found it difficult to talk about it, i think mainly due to them wanting to protect you, something all parents want to do.…[Read more]

  • hmj replied to the topic Associated Cough? in the forum Newcomers 9 years, 6 months ago

    My dad developed a cough some years ago, we just put in down to the drugs, the doctors could never find a reason for it,and we got so used to it you sort of forgot about it!

  • Thank you Mavis,

    Its such a difficult thing to live with serious illness for so long, you almost don’t know what to do with yourself afterwards, like cancer was our 5th family member, always hanging around in the backgroud waiting to show its face again. But people do beat the odds and I hope that one day this will not just be a treatable…[Read more]

  • Thanks Tony,

    I hope it does help the other people living and fighting this disease, a strong mind can do wonders,

    best

    hmj

  • I’m just new to this forum, although over the years as I have gotten older I have read many people’s posts to try to understand more about this disease and see how other people were coping with things. We just lost my wonderful Dad after 19 years of MM.  It all seemed so quick, one minute we were chatting the next day he had deteriorated to the…[Read more]