ianb

  • ianb replied to the topic Daratumumab in the forum Newcomers 6 years ago

    Hi Gerry, sorry to hear things are not too good.

    Also sorry to see that your consultant said that only 1/3rd of patients have a successful outcome, that concerns me no end. The drug info sheet rates the success rate at nearer 61% as a mono treatment. When used as a combination treatment this increases to 83%-93% depending on your starting…[Read more]

  • ianb replied to the topic Daratumumab in the forum Newcomers 6 years ago

    Hi I am picking up a few sigs and shares and will keep sharing where I can. This could so easily have been me.

    Has there been any thought in taking this injustice and what can only be described as moraly wrong to the media to try and get this story more public?

    Ian.

  • ianb replied to the topic Daratumumab in the forum Newcomers 6 years ago

    Potition signed and shared on my FB page for more sigs.

    Ian.

  • ianb replied to the topic Daratumumab in the forum Newcomers 6 years ago

    Hi, I am starting Daratumumab on Monday as a 4th stage treatment as per the Nice approval, based on the phase II level tests. All well and good, until you find out that most of Europe including Scotland  have approved it for use as a combination drug based on the results of the phase III level tests, which show are huge increase in success. Nice…[Read more]

  • ianb replied to the topic SCT at Southampton. in the forum Newcomers 8 years, 6 months ago

    Thanks to everyone who has commented back, i really appreciate it.  I’ve got to be honest, i am a little bit on the fence here.  Having had a really good response on Lenalidomide and the lack of data on staying on a maint dose of Lenalidomide against having SCT is niggling me a bit.  I know the history behind the SCT but my consultant said that th…[Read more]

  • ianb started the topic SCT at Southampton. in the forum Newcomers 8 years, 6 months ago

    Hi everyone, I am not new to Myeloma but new to this forum so I hope i am posting this in the correct place.  So, like i said, HI.  I am  52 year old male who was 1st diagnosed with MM back in Feb 2009 and initially had a horrendous time between diagnosis and getting home from hospital 5 months later. I was not allowed to move for the 1st 3 mo…[Read more]

  • ianb became a registered member 8 years, 6 months ago