IanPitcairn

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  • #140621

    ianpitcairn
    Participant

    I was diagnosed in 2016 here in France, and since then have had two periods of Carfilzomib during which my lambda peak reduced. Am now on Ixazomib in the 5th 28 – day cycle and the peak seems to be rising. I saw the article in the BMJ about the woman whose chemo ceased to work and who moved to 8 gms (8000 mgs) daily of Curcumin and after 5 years the MM is stable. So, I have started (6 weeks ago) taking Just Vitamins, 10 gms pills daily along with the Ixazomibib. I have the OK from my consultant, although he says it is all poppycock and not get my hopes up! Just had a blood test this morning and have a consultation in Sept. Any thoughts anyone?
    Ian

    #140618

    ianpitcairn
    Participant

    I’m in my third period of chemo; the fifth 28-day cycle of IRD. I’ve also started taking 10gms of Curcumin daily, following a case study reported in the BMJ of a woman whose Multiple Myeloma had been stable for 5 years (following the failure of chemo treatment after. 2 periods of treatment),during which time she had been taking 8gms of Curcumin daily.
    With regard to diet – I try to increase my fruit and veg. and protein, and drink as much water as I can. My taste buds are very messed up, so I don’t often enjoy my meal. Wine tastes disgusting. My consultant (Prof.Leleu in Poitiers, France) has prescribed 1.5l magnesium enriched water to combat cramp.
    Good luck with your project. I’m not on Facebook, so I’ll try and remedy that.
    Ian Pitcairn
    Marcilly
    Liglet
    86290
    France

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