Icsdam

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  • #152417

    icsdam
    Participant

    Hi Rabbit,

    Thank you for your reply and so quickly too.

    I haven’t been offered any of those options. Could it be because I am in Scotland and they are not approved for 2nd line treatment?

    I had asked about Daratumumab with lenalidomide and dex as data from the Pollux trial gives very good results but apparently it is only approved for newly diagnosed patients in Scotland.

    #152415

    icsdam
    Participant

    Hi All,

    I have relapsed after ASCT and have to decide between 2 options for 2nd line treatment. These are belantamab mafodotin with bortezomib and dex or carfilzomib with lenalidomide and dex.
    The belantamab mafodotin obviously gives better PFS but I am really concerned about the eye side effects as I live on my own and do not have family nearby to help if I was to get blurry vision and/or significantly reduced vision such that I could not see to read or drive.
    I know that this drug is a relatively new option but wondered if anyone had experienced significant eye effects and how this impacted daily living.
    Very grateful for any replies that might help me make this difficult choice and wishing you all the very best in your myeloma journeys.

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