Hi Dee, my mum is tired quite alot too, they have to listen to their bodies and go and lie down when it tells them too. My mum is doing really well Dee which was hard to imagine in the beginning I hope it will give you some hope x Her kidneys were only functioning at 20% I think when she was admitted and have now just gone back into the normal range which is fantastic as they were unsure they would get back to that. I think my mum was more ill with the first cycle of Velcade because of her kidneys, she was readmitted on week 3 of first cycle with temp and terrible sickness she had to have iv paracetamol and sickness drugs and then a blood transfusion. Now though Dee she has just started her 3rd Cycle of velcade and is a different person, it doesn't effect her as much and she has been out and about with my dad and hasn't suffered no where near as many side effects. Her paraprotein levels have really dropped too so its looking very positive at the moment. I really hope this may help you, I know its very individual and can change all the time but I wouldn't have imagined this much improvement when she was in the first month as it was a very scarey time and I had never seen her so ill. I really hope your dad starts to improve Dee, lots of love and if you ever need someone to talk to I'm always around x xx x x xxxx
