[ilovemymumParticipant]

Hi everyone, many thanks again for your comments its so helpful. Eve I wouldn't have known that the kidneys could clear so thats good to know x That sunshine didn't last long so hopefully slim won't be needing his factor 50 at the moment! I didn't realise the chemo affects your sun tolerance, mum hasn't been out much apart from the hospital trips.Vicki and Colin you are right when my mum is bright I feel much brighter too and we have to hold on to these feelings x Jill sounds like our mums are having similar treatment, my mum isn't on anything apart from velcade at the moment, originally when she spent a week in hospital they gave her steroids for about 4 days but then the renal people wanted her to have the velcade because of her kidneys so since the hospital stay its just been the velcade. She has an appointment on the 3rd July with the Haemotology people so think they will find out more then ( I can't go with them as my son is having an op that day). Take care hope you are all having a good day. Lots of love Rachael 🙂

[ilovemymumParticipant]

Hi Dee,
My name is Rachael, my mum was recently diagnosed and I understand its very scary. If you ever want to ask anything (although I am only just learning it all myself) feel free, I have shed bucket loads of tears some days then feel really positive on other days. Keep strong and look after yourself as this is the best way we can help our parents I think x Lots of hugs and love Rachael x x x

[ilovemymumParticipant]

Morning all of you lovely people x Eve, they did put my mum on a course of antibiotics and sent her home with them x she had a renal appointment yesterday and although they confirmed the myeloma is in her kidneys they are pleased because her kidney function is no worse than when she was first diagnosed (hopefully it means the treatment is having an effect as I would have thought they would get worse if it wasn't). My mum is much better today very cheerful and bright. My mum doesn't do "online" but I have been telling her about all you wonderful people and the fab advice and reassurance you give. Does anyone else on here receive treatment in Cambridge I'm wondering?? Also if it helps anyone on here starting velcade just wanted to say my mum was suffering with a really bad dry mouth and it has suddenly gone today so if anyone else is suffering with that it does pass.Anyway hope you all have a lovely day and are enjoying the sunshine 😎

[ilovemymumParticipant]

Morning All, Thank you so much for all your responses x my mum came home late last night (she insisted) after antibiotics and fluids and they had got her temperature down just as you said! They ended up giving her a blood transfusion as she is anaemic.She was very upset this morning think it may have hit home a bit now, I have tried to convince her that it will get better she feels so sick all the time and my poor dad keeps trying to get her to eat as she is just picking at food, my dad worried that taking all the tablets on not a lot of food isn't helping. She has a renal appointment this afternoon and another velcade on friday but no clinic appointment until the 3rd July.Dai,My mums name is Janice and she is being treated at addenbrookes hospital in Cambridge. Thanks Guys was having a moment earlier and just reading your messages makes it a little better x x x x 🙂

[ilovemymumParticipant]

Morning, thank you all for your welcome to the group x its so lovely to be able to come on here. Thanks for your advice it really helps. Had to take my mum to hospital shortly after writing this post last night as she had developed a temperature, they have kept her in and given her some more anti sickness drugs etc. I have to say the Hospital are being fabulous and so thorough, the Haemotology doctor was there in A and E waiting and she has been taken up to the Haemotology ward as her kidney function was a bit off again. Now taking my dad back over this morning and hopefully mum will be feeling a little better. Have to take a step back and understand that its the drugs that make her feel so ill and not just this awful illness.
Chat soon love Rachael x x x P.S I do hope you are all okay today x

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