[ironbear62Participant]

Thank you Shropshire Lass, I’m all sorted now having had Pfizer jab number two on Sunday.
The transplant team at QE did indeed send me a detailed letter, and this was instrumental in getting things done, having circulated it to my GP and beyond.
The clinical lead for vaccines eventually arranged my jab, in the maternity ward of all places – I can confirm I’m not pregnant either – but seriously, we shouldn’t have to go through all this worry and chasing after people. They know who we are, we should be prioritised and better looked after. If only communication was better.
Now for my childhood vaccines…

[ironbear62Participant]

Thanks for the advice. Unfortunately my transplant team were in a different local area health authority to my home, SCT in Birmingham but back home recovering in Shropshire = confusion!
I think there will be more hassle and confusion for SCT patients in the weeks to come until the whole re-vaccination issue becomes clearer and different local authorities get a grip.

[ironbear62Participant]

I’m glad he got his jab. If we lived in Birmingham it would have been done automatically. You’re right, the situation is stressful enough without having to battle and jump through hoops just to get another jab. As you say, there must be many more. The clinical commissioning group via your GP appears to be the way to go.

[ironbear62Participant]

Hi, I had both of my Pfizer vaccines in Jan and April this year before having my SCT in QE Birmingham a month late, which I’ve just about recovered from. I was invited to be re-vaccinated in a letter from the consultant as I am now considered “never vaccinated.” After many phone calls, my GP contacted the Clinical Commissioning group and they are going to offer me another Covid vaccine soon in Shrewsbury. Confusion reigned because my transplant was in Brum but I live in Shropshire, nobody communicates or shares info, and I don’t fit any of their tick boxes!
I hope things work out well for you.

[ironbear62Participant]

Thanks David. By sheer coincidence my GP’a practice supervisor has contacted the clinical commissioning group today, who are arranging a “specific request” Covid jab for me in the near future. Turns out that NHS medical records don’t have to be amended or deleted at all. This is just a warning that all may not run smoothly for any other of you good folks out there who find yourselves “never vaccinated” after a SCT and don’t tick any of the usual boxes.

[ironbear62Participant]

Shaun, David, Etta thank you for the encouraging words.
I love and share your optimism. Reciprocating those good vibes.
David, I sympathise with you on the diarrhoea and inevitable fatigue, but it could be a hell of a lot worse I suppose.
Etta and David, The five minute injection is a massive breakthrough and it’s a cautious thumbs up from me here at the end of the first cycle.
Roll on 2021 and that SCT. I’m ready for a reboot!

[ironbear62Participant]

Hi Matthew
Give your local authority a ring. After waiting for weeks on a postal application, I rang my local council, gave them the details of my multiple myeloma diagnosis, and received my blue badge within a couple of days. It cost me £5. Worth speaking to them direct. Best of luck.

[ironbear62Participant]

Thanks Shaun and Kevin for those words of encouragement. Sometimes it’s hard to see the light at the end of the tunnel. Cycle one complete, and the only side effects so far are an increased appetite and feeling knackered! Surgeon is happy with my bionic back,bone already starting to regenerate, should be as good as new after 12 months. One step at a time. Cheers guys.

[ironbear62Participant]

Hi Rosary
Thank you for the encouraging words,they mean a lot.
I guess I need to research more into the specifics of what my surgeon called a “bone marrow transfusion”, but the only way I’ve been able to cope and deal with this avalanche of devastating emotion and physical challenges is to take it a step at a time, breaking it into manageable targets so far; operation√ walk with zimmer/crutches√ radiotherapy X5√ now chemotherapy, a cycle at a time. All I know is that I’ve had a biopsy (bloody painful) and constant blood samples taken weekly, so I guess I just trust the professionals. Nearer the time I guess I’ll know what lies in store but I struggle to cope with looking too far into next year at the moment. I’m busy coping with the present, and living for the moment.

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