Best of luck ozzy and keep going with the improvements. Bet no one would have sct if there was another banker guaranteed process!

Vicki and Colin x

Hi Jill

Like Helen etc Colin had bouts of constipation and diahorrea. We were told that being constipated can cause a back up in the bowel that can then cause diahorrea when things become free! Too much information I know but it was clear that upset tummy after bouts of constipation. What they did was give him a light laxative to keep things…[Read more]

Ann and Pete

Thinking of you both…..as the others have said its doable, but b hard and it takes a chunk out of both of you for different reasons. Focus on the future and have a few things in mind to look forward to. The simple things will be wonderful as it never seems like you'll get there….a simple walk, a meal together, a meal out etc.…[Read more]

Hi all

Peter well done with your sct and keep doing but don't over do it…how the heck can you e at work one month ish on? You are super human! Me would be nagging you to slow down, bet mrs Peter is!

Helen, glad to hear that Gary has his cells back, what a great moment! And the thing with the cat, that must be so hard! Best to check but…[Read more]

Hi all

Jean and frank so glad the cells went back. I wish I could have been there when Colin had his, but couldn't and they didn't invite me to that party. I cried when he told me they'd gone back in! As Helen says its a huge moment! I so hope you and frank are doing ok, it's been such a wait for you both ! now the cells are back in the immune…[Read more]

Hi Tina,

Hope you are progressing well and feeling better each day 🙂 I don't know how they work it you know….I suppose they are checking general remission averages, based on the masses of who takes it and who doesn't? Who knows. Colin elected not to take it in the end, his call and hopefully not affecting his remission rates…….

Hey…[Read more]

Tom you are hilarious!

Brightens our day…..would it be posh crisps and nuts or just common peanuts haha! 🙂

Vicki and Colin x

Hi Jane

Sorry you were having a downer, hope you are feeling better a bit now! The waiting before treatment starts is nerve wracking and frustrating, wanting to get on with it, but being scared Colin for himself, and me for both of us! How to cope, what will happen etc…..but you do cope because you have too! It's the lifeline to make things…[Read more]

Well done ozzy that's great news. Keep in going and enjoy your short break!

Vicki and Colin x

Hi Ann and Pete

How you both doing. It's really difficult Ann, I remember it so well. The only way is up now! Colin seemed to do well on jelly for a while and then a bit of ice cream, but overall he was like Pete. Once it starts to clear though it goes quite quickly. Someone recommended Jaffa cakes and I took those in, they worked for a while…[Read more]

Hi all

Jean, good luck for this next week and keep us posted. When Colin had his sct they went out of their way to tell us that the consultant would be on at weekends! I can vouch for it, I saw him…..he didn't smile much but he seemed to know what he was doing ! Frank will soon be out again and watching Man U to his hearts content.

Take…[Read more]

Trish and Peter

Good luck with this next course of treatment, hope its a very smooth ride for you all!

Vicki and Colin x

Hi Phil

The randomisation was a bit weird, we had a chat with the trial team and they seemed to be gauging our thoughts before doing the randomisation. In the end we came to the conclusion that Colin didn't want to take it, who knows if that's the right decision or not, but only time will tell.

Good luck with yours though, by the way I get…[Read more]

Hi Jane

Sorry to hear your news 🙁 , my partner Colin was diagnosed in October 2011 after having what we thought was a bad back ha ha! He had an sct in November 2012, after having 7 cycles of rcd (revlimid, cyclophos and dex). We were really scared to begin with and wondered how the heck we got here! It's amazing how many people have to…[Read more]

Oh jean and frank,

What! That's pretty bad isn't it! People are only human but it doesn't help with all the stress and you having to wait so long anyway! Best of luck for Monday! I am sure you will be keeping a close eye jean!

Vicki and Colin xx

Ps hope you enjoyed Barcelona Helen and you are feeling ok despite the scores being a little…[Read more]

Hi Pete and Ann

Sorry to hear of peters swallowing problems. I remember that so well when Colin was in. It was horrible as there is nothing that can be done, other than wait for it to get better. Remember pineapple juice is supposed to be good to help soreness and ease the blistering?

Hope you are ok too Ann x

Vicki and Colin x:-)

Hi Vicki, from another one, trish and Peter,

Sorry this is a definite relapse. What a blow, however everyone seems so positive about this velcade that its got to be a winner. I hope that the response is a speedy one and then you can enjoy many more happy nights of curry and wine 🙂

Onwards and upwards as Tom would say!

Vicki and Colin x

Hi nicki

Sorry to hear you are having a tough time, and that word relapse, I hate it! I can understand how you can develop some emotional, mental health issues in dealing with this condition, as supporter or sufferer! It is so challenging and the fatigue of being a supporter and the worry of caring for the person you love can have some…[Read more]

Hi Ann and Pete,

We are ok…..Colin's hair needs cutting! Hey you guys we remember that sweetcorn smell. It's weird. It is a really tough time but well worth it, although asking coiln afterwards he said never again! Colin did struggle with food, partly due to mouth and mainly due to Rubbish hospital food,mat their own admittance. Good luck…[Read more]

How's it going Ann and Pete?

Vicki and colin