Janeww

Forum Replies Created

Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • #95763

    janeww
    Participant

    Hi

    I've just returned from SE Asia (hong kong, Bangkok, ko Samui) and had no problem with my prescribed drug stash that I took with me. I took not only my current meds but standby meds for just in case and did have visions of being stopped there were that many, especially in Bangkok. They never even gave me a second glance. I had a letter from my Consultant with current situation re myeloma and list of medications/doses.

    Jane

    #110872

    janeww
    Participant

    Thanks Tony.
    Dare I say I am extremely well at the moment having undergone an autologous transplant in May 2012 followed by a reduced intensity unrelated donor stem cell transplant in October 2012 although still get really tired.
    Hope your myeloma is not causing you any difficulties.

    I may venture into London at some point on Sunday as well. I will see how I feel on the day.
    Best wishes
    Jane

    #110870

    janeww
    Participant

    Hi Tony

    My brother, John, is also riding in the event on 4th Aug and he too is raising money for myeloma UK.

    I live in Manchester (i have myeloma) but will be going down to cheer him on and will be wearing the orange of myeloma UK.

    Best Wishes to Rob and all the other riders. Is he wearing myeloma orange as well. I 'll look out for him and give him a big cheer.

    Jane x

    #93932

    janeww
    Participant

    Hi Wendy

    My only experience of bone pain was at my initial diagnosis (nov 2011) when I had a full skeletal survey done which showed I had multiple bone lesions all over plus 2 compression fractures to spinal vertebrae. My bones were described as looking 'moth eaten', it was all extremely painful at the time which need very strong painkillers to control but now I have no bone pain post autologous & reduced intensity unrelated donor transplant.

    It is very worrying when new symptoms occur but try and remain positive until your haematology team can give you the answers you are looking for. Do you feel well in yourself? Have you had any trauma/injury to the hip region? Have you been exercising any differently? Have you had any blood tests recently ie. light chains/ paraproteins etc.

    This doesn't really answer your post but hope your appointment goes well with the haematology team
    Best wishes
    Jane

Viewing 4 posts - 1 through 4 (of 4 total)