bandityoga replied to the topic Newly diagnosed – Private v NHS – advice needed please in the forum Newcomers 10 years, 9 months ago
Hi Angela
My husband Ian was diagnosed in October 2012 and chose the nhs as consultant advised that he would se the same doctors. He has had really good treatment and advice from all staff.
Wishing you well.
Maureen x
bandityoga replied to the topic Whoops! in the forum Treatment 10 years, 9 months ago
Hi Andy
Good news. Enjoy your beer.
Maureen
bandityoga replied to the topic WOW guess who got a "paraprotein not detected"? in the forum General 10 years, 9 months ago
Good news David hope you get a long remission and enjoy your holiday.
Maureen x
bandityoga replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 9 months ago
Hi Tom
It was a good bottle of red.
Hope you aren’t having too many side effects from the drugs.
Maureen x
bandityoga replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Tom
Ian’s BMB showed 20% plasma cells but all bloods and kidney function normal. Got at least 1 months reprieve before he starts treatment again.
Start counting sheep when you’re drinking the vodka. lol
Wine for us tonight.
Onwards and upwards.
Maureen
bandityoga replied to the topic Whoops! in the forum Treatment 10 years, 10 months ago
Hi Andy
Another hospital stay but Steph was good catching it quick. How long are you on antibiotics?
Ian’s had 6 weeks of antibiotics for his back wound which will be finishing soon.
Maureen
bandityoga replied to the topic Swollen right Leg in the forum General 10 years, 10 months ago
Hi David
Glad you got it sorted out. Myeloma site is great for information.
Hope you will be well for your break away.
Maureen
bandityoga replied to the topic New member in the forum Newcomers 10 years, 10 months ago
Hi Sarah
Don’t give up hope. My husband was told he might never walk again and is now walking with sticks and can climb the stairs. Be positive and take one day at a time.
My husband drank lucazade which gave him energy.
Maureen
bandityoga replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Tom
Hope all goes well with the new treatment and you don’t have too want side effects.
Keep drinking the vodka and it’ll help to kill of the mm lol.
Maureen
bandityoga replied to the topic New member in the forum Newcomers 10 years, 10 months ago
Hi Sarah
It will be good to have your husband home. Ian is now walking with sticks and getting stronger. We got a grant for a wet room with hand rails. He also has a riser recline chair, Comdex also used in the shower and a hospital bed. Speak to your social worker if you need anything.
Maureen x
bandityoga replied to the topic general update in the forum General 10 years, 10 months ago
Hi David
Sorry to hear you are having a hard time. Hope you get that holiday. What insurance company do you use?
We have planned our first getaway but only for one night. We are having at treat at Gleneagles Hotel. Will look at booking somewhere warm if Ian is well.
Maureen
bandityoga replied to the topic New member in the forum Newcomers 10 years, 10 months ago
Hi Sarah
Ian wasn’t advised to avoid any types of food but I do wash fruit thoroughly and we only eat red meat once a week. Was told to eat lots of proteins to heal wounds and I also give him a teaspoon ogre manuka honey every day as it is good for the immune system.
Hope M is home soon
Maureen x
bandityoga replied to the topic Pneumonia – but better now! in the forum General 10 years, 10 months ago
Hi Tina
Glad you have recovered and wish you well for 2014
Maureen x
bandityoga replied to the topic New member in the forum Newcomers 10 years, 10 months ago
Hi Sal
Sorry to hear about M. My hubby is 57 and has had several operations on his spine and lost mobility. He is now walking on crutches and getting stronger after more than a year in hospital. Take one day at a time and try not to look far into the future. Comfort him but do try to make him do things for himself and be independant.
Go to the…[Read more]
bandityoga replied to the topic New treatment starts today. in the forum Treatment 10 years, 10 months ago
Hi Andy
Had a nice Christmas and New Year at home with friends and family.
Hope you enjoyed the festive season and that the new treatment will work to give you some remission. Ian,s ChristmasFLC now 583 so BMB scheduled soon and more cycles of CTD.
Stay positive and yes every day is a gift.
Maureen x
bandityoga replied to the topic Scottish Borders in the forum General 10 years, 10 months ago
We are in central Scotland and get treatment at Forth Valley Royal hospital. We have found the consultants very good. I believe Dundee have a specialist unit for myeloma
Maureen
bandityoga replied to the topic Ian out of hospital in the forum General 10 years, 11 months ago
Hi Graham
Had a nice Christmas with the family and spending New Year with friends. Ian is still on antibiotics for the wound in his back but we only attend hospital once a week. He is also receiv i ng physiotherapy and can now walk short distances on his crutches. His FLC are rising, now 538 so getting BMB soon and talking about more treatment,…[Read more]
bandityoga replied to the topic Happy new year in the forum Off topic 10 years, 11 months ago
Happy New Year Jean and Frank. I hope it will be a good year and a cure for myeloma will be found or a miracle.
Love Maureen & Ian x
bandityoga posted an update 10 years, 11 months ago
Hi Andy
Haven’t heard from you recently. Hope you are well and had a good Christmas
Maureen
bandityoga started the topic Merry Christmas in the forum Off topic 10 years, 11 months ago
Hope everyone has a lovely Christmas and we all take time to remember all the brave people who have passed away and their partners who are left behind.
Lets hope 2014 will be a good year for all of us.
Enjoy every day.
Maureen x