[jaredParticipant]

Hi Emma

i have my SCT in September 2014 the disease returned within 4 months.  I have since been on various chemo regimes like Velcade etc.  now on lenalidamide maintenance treatment.

Although not ideal I’m only in my early forties just got to keep on going.  There is plenty of treatments out there.  Keep researching and pushing for more answers at hospital.

Keep positive

 

Jared

 

 

[jaredParticipant]

Hi Mavis

 

Many thanks have checked out the JetBlack blog, have a month off of Chemo now as I am to be scanned again at the end of April to see how much myeloma is still lurking behind the scenes, if all ok been told will probably have a couple more months of chemo before the Donor Stem Cell Transplant.  still not 100% sure its the right thing but don’t really know if I have any alternatives.

 

jared

 

[jaredParticipant]

Hi all, I am new to the site but was diagnosed with multiple myeloma in January 2014.  I am on the myeloma 11 trail had combination chemo for about 6 months then radiotherapy before having a transplant in September (my own stem cells).  Unfortunately for me it hasn’t worked well and for the past 4 months I have now been on chemo again (velcade)  I will be scanned again in the next few weeks and have been told my best chance is another transplant (donor this time).  in one way I believe I am lucky as the ct scans picked up the cancer better than my weekly blood tests did, however the thought of the new transplant is worrying me as I have been told it is much more invasive and more risky than my stem cell transplant.  In fairness my SCT wasn’t as bad as it could have been however to find out the cancer would return within 4 months felt like a real set back.  Has anyone here had or no of someone who has had a donor transplant as I would like to know how they are getting ready on.  Thanks and good luck to everyone I am 46 by the way and living in North Devon.   Jared

 

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