Jim2539

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  • #140999

    jim2539
    Participant

    Hi folks, I find it so interesting reading how other people,s response to treatment differs, I was diagnosed with mm in November 2017, the local oncology/haematology dept where brilliant, as I am not the best of patients, my chemo journey compared to what others describe was a piece of cake, dexomethasone however it’s spelt another drug cycotropic something or other and velcade injections, ongoing zometa and later immuglobin infusions later, the velcade did make my fingerpads slightly numb and the Dex gave me insomnia but only on the night after I took it, I’ve had about 18 months with low counts but now the paraprotines are now starting to rise, which is a little disappointing, unfortunately copd prevents me from having the stem cell treatment, but all is not lost as I seem or my body seems to respond well to treatment, just have to wait and see if the raised count is just a blip, apparently my counts do seem to go up and down, anyone else have this occurrence?. Might I ask, does anyone still travel abroad during or after second line treatment, I seem to struggle to find reasonable travel insurance after first line treatment.

    #140998

    jim2539
    Participant

    Hi, I was virtually housebound and for a short while actually gave up driving, in a lot of pain and also wearing a back brace, once the chemo started mine only required a once a week visit to the day unit for a velcade injection, which is a piece of cake, and two days worth of tablets which you take at home, seemed complex when introduced to the regime, but a couple of weeks into it no problem, however treatment and chemo medication varies from patient to patient. I can now drive again, and walk small distances, I no longer take any pain killers, as my back pain is only light, unfortunately I cannot lift anything.

    #140997

    jim2539
    Participant

    Hi Josie, by now you’ve probably been diagnosed, but just in case you have not, multiple myeloma is diagnosed and confirmed by a haematologist, with light chain counts etc, then later a bone marrow biopsy. I know it is a frightening situation, but as my consultant said to me, we can treat it. No health scare or diagnosis is ideal, but at least with this one it’s not completely doom and gloom

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