Donna I was shocked and saddened to read about your mum Gill. She was truly a lovely, sympathetic women who was alway supportive. I Loved to read about trips to France and the dogs. I always remember Gill replying to a post on advice for travel advice and she answered “Stephen says he’s not going to wake up in the morning with an acute case of…[Read more]

Hi Helen

I’m very rarely on the forum these days. Just popped in and saw your post. So glad to read that you are doing well. Have you been able to get away anywhere. Hope you go from strength to strength

Mavis glad to read your remission is still strong. Frank is on pregablin for the aftermath pain of shingles. He’s been on them over 2 years but…[Read more]

Hope it does work for you Ted. Keep us informed

Jean x

Hi Ted

I don’t know about adults but one of my sons, when a baby, had one chest infection after another. Things where really bad – they test d him for cystic fibrosis (thank God – negative). They suggested hemaglobin injections. He had them and it was great for him. My hubby is 3 year remission and recently he has had quite a few chest…[Read more]

Lorraine

Are you on FB. I asked and got replys – you can do a search for UK Myeloma Support Group on Face Book. Michelle posted “What problems is she having Jean? I’ve accepted all the joining requests over the past few days?” Someone else suggested that you ask Ellen Watters who is in Myekoma UK. If you still can’t get on let me know. It is an…[Read more]

Hi Jane

Sorry if I’ve mislead you. Frank smouldered for nearly 7 years and proteins where rising – very slowly – consultant decided to do SCT. In retrospect we think she did it a bit quickly because of his age. In Northern Ireland cutoff for SCT is 70. She started him on CDT. Chemo, Dexter and thalidomide. How long has hubby been smouldering? Is…[Read more]

My husband diaganosed with Smouldering Myeloma in 2006. Had SCT IN March 2013. We have BUPA and when diaganosed he spoke to his consultant about going private. She was not in favour of it and he went NHS. They have been brilliant. When he needs scans etc he gets them quite quickly. Couldn’t fault NHS

Jean

Hi Vicki what a lovely surprise. I’m rarely on forum as I’m on the Facebook forum. Pop in occasionally. How are you doing. Really lovely to hear from you. The say Frank is still in remission but he has now developed diverticulitis which is painful. Seeing consultant 25 February and after all this time I’ve a list of questions Vicki I hope you are…[Read more]

Hi Vicki what a lovely surprise. I’m rarely on forum as I’m on the Facebook forum. Pop in occasionally. How are you doing. Really lovely to hear from you. The say Frank is still in remission but he has now developed diverticulitis which is painful. Seeing consultant 25 February and after all this time I’ve a list of questions. Months before…[Read more]

Hi Vicki what a lovely surprise. I’m rarely on forum as I’m on the Facebook forum. Pop in occasionally. How are you doing. Really lovely to hear from you. The say Frank is still in remission but he has now developed diverticulitis which is painful. Seeing consultant 25 February and after all this time I’ve a list of questions. Months before…[Read more]

Hi annlynn. Going to playa blanca to Volcan. You?

Mag my hubby was diaganosed in 2006 with smouldering myeloma. Had SCT in March 2013 – thank God in remission. The only time we stopped holidaying was during SCT and for 3 months after. We have cruised and holidayed in Europe. We have a yearly policy with All Clear. Only place haven’t been back to is America as insurance is too high. We are also…[Read more]

Hi Pav

Don’t know if I will be of any help. Myeloma is a very I dividuL disease. My husband, like yourself, a routine blood blood test and something showed up and doctor sent him to haematologist. They did a bone marrow test and told him that it showed myeloma but he was smouldering. That was in 2006 and up until 2013 he was still not showing…[Read more]

Laura I’m truly devastated to read your post. The risks were explained to us before my husband had SCT but to be honest I don’t think they registered with me. Although my husband has been in remission for over two years, he said he would never do it again. I’m truly sorry for your loss

Jean xx

Hi Gill

So lovely to hear from you. It is hard to believe it’s been 3 years since Stephen died. I always read your posts and especially about France. One thing has stayed in my memory – the thread was travel insurance – and part of your post was ……. And Stephen said “I’m not going to wake up in the morning with a severe case of Myeloma ”

I…[Read more]

Hi Roseanna

I think it depends on the hospital. When my hubby was in for SCt, for about 1 week I was the only one allowed to visit him. Before I went into his room I had to go into an anti room and put on a gown and gloves. Every time I left his room I had to go through the same thing. He didn’t and at times couldn’t eat, so,I brought in his…[Read more]