JeanSmyth

  • Hi Eve

    I also am on site very rarely but Was great to read your post. Enjoy our scrabble. Eve I’m sorry to have to tell you but JoJo passed away on 15 February. We kept in touch and her daughter Paula emailed Tom and myself to say she died of heart failure. She was such a lovely woman and I do miss our “chats”. This damn disease – and now the…[Read more]

  • jmsmyth replied to the topic Colin in the forum General 6 years, 9 months ago

    Dear Vicky

    I haven’t been on forum for some time. I am devastated to hear of the passing of Colin. My thoughts and love are with you at this very sad time.

    Love jean xxxxxxxx

  • Hi Yvonne

    My husband was diagnosed in 2006. He smouldered until 2012 and had SCT. When he was diaganosed I contacted Myeloma UK and they sent me a diary. Over the 9 years it has been invaluable to us. It has different areas – what treatment in – what questions to ask etc. the part I use most is blood results page. It tell you what the normal…[Read more]

  • I was shocked to hear of your dads passing. My deepest sympathy to your family

    Jean

  • jmsmyth replied to the topic Little things in the forum Carers 7 years, 2 months ago

    We also have the Braun ear thermometer. My DIL brought a wand thermometer – doesn’t touch the skin – just wave it across the forehead. She said it’s brilliant

    Jean

  • Hi Vikki

    Great to hear from you. Sorry to hear Velcade didn’t work for Colin. Not on here very often so when I got your post I looked back to see how Colin was doing. He’s had had a rough time and he’s thinking OF GOING BACK TO WORK!!!!! I hope the new treatment works. Blo*dy disease.

    Frank has his up and down days. We both took chest…[Read more]

  • jmsmyth replied to the topic Shingles in the forum General 7 years, 3 months ago

    Ps Ron – Ellen and or Maggie are brilliant (on the helpline). Helped me on many occasions.
    Best wishes
    Jean

  • jmsmyth replied to the topic Shingles in the forum General 7 years, 3 months ago

    Hi Ron

    My husband had shingles last year (1 year after SCT) it was bery painful and he still gets some pain. Consultant prescribes aciclivoir anti virol and pregabalin for pain. He has been on them for over 1 year and consultant in No hurry to take him off them. Frank is 72 and he got a letter from GP to get the shingles. He checked with…[Read more]

  • Hi Andy

    Just caught up with your post. I’m so happy for you it’s wonderful news. Know you have had hard times – so keep up the good work

  • Hi Tracey

    I’m not on the site much but came across your post. My husband was diagnosed September 2006. I went to pieces .- I cried most of the time but I was referred to a therapist. It took time but I eventually it helped me. Frank had a STC transplant in March 2013. It’s not been easy but he is in remission (thank God) and we try to live each…[Read more]

  • Hi Rosie

    I’m so sorry to read of the passing of your husband Chris. I know your children and family will be of great comfort to you and to help you at this terrible time. Such a lovely picture of your husband – the Glens of Antrim, know it well

    God bless you and your lovely family

    Jean x

  • jmsmyth replied to the topic Travel Insurance in the forum Under 50s 7 years, 6 months ago

    Hi Matt

    When Frank applied for policy, he had to answer loads of questions. One they kept harping about was “are you on very strong pain killers”. He asked what they called strong. They never had an answer for that and as Frank was only taking paracetamol – they accepted that. He got the yearly policy and when they sent the renewal policy it had…[Read more]

  • jmsmyth replied to the topic Travel Insurance in the forum Under 50s 7 years, 6 months ago

    Hi Matt

    My husband has been in remission for over 2 years. We love cruising and we got the best deal from All Clear – a yearly policy. When we asked about cruising in the Caribbean – I can’t remember what it cost but I know it was astronomical – so we stay with in Europe. Hope someone comes along and can give you more info

    Best wishes
    Jean

  • Hi Angela and Graham

    Move over Sir Bob. I really enjoyed that. Real good feel video. All looked if they were enjoying it.

    Great well done
    Jean x

    P.s the drummer was brilliant

  • jmsmyth started the topic Helen and Jo in the forum Off topic 7 years, 6 months ago

    Good result – hearing from Vikki. Does anyone know anything about Jo and/or Helen. I’ve not heard anything and just wondering how they are

    Jean

  • jmsmyth replied to the topic Colin & vicki in the forum Off topic 7 years, 6 months ago

    Vikki last of my post went missing. Rabbiting on too much. Hope things go week for Colin and Maureen hope thing also go well for Ian. I always thi k of Colin, Ian and Frank as SCT buddies

    Keep in touch
    Love Jean x

  • jmsmyth replied to the topic Colin & vicki in the forum Off topic 7 years, 6 months ago

    Hi Vikki

    Has Colin started the treatment yet? Frank got lots of cells but consultant put them all back as she said that he’s too old to have a second transplant. I still think that consultant went ahead with transplant – PP’s had been dropping for months and as his next birthday would be 70 – the cut off point – she went ahead.

    Vikki Frank…[Read more]

  • jmsmyth replied to the topic Colin & vicki in the forum Off topic 7 years, 7 months ago

    Hi Vicki

    Like yourself I’m not often on the forum. Looked in a few weeks ago and saw Maureen’s post and also wondered how Colin was doing. I’m sorry to hear that he’s having a hard time. Those bloody shingles are awful. Frank had them a few months ago and Dr put him on pregablim. Has Colin been taking them. Frank can’t get off them as he has…[Read more]

  • jmsmyth replied to the topic Myeloma Nurse in the forum General 7 years, 7 months ago

    Hi Sue

    I email the nurses – Ellen or Maggie. Email address for both is askthenurse@myeloma.org.uk. I email as then I have a written response that I can refer back to. They are excellent and reply quite quickly

    Jean

  • jmsmyth changed their profile picture 7 years, 8 months ago

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