Vikki that information is very helpful. I didn't know that about the cleansing. Thanks. Hope Colin goes from strength to strength

Love jean x

Hi Carryanne

My hubby finished SCT in December. There was one month when both his feet and legs swoll up. When he phoned the unit they told him to go up. The doctor gIve him agood examination and sent him home. Eve told us to raise his feet and that seemed to do the trick. Hope things improve

Love Jeax

Thanks for that Megan and good news for Phil. It's always on my mind and just wish we could get it started. We go on Thursday week to hospital and this time I am going to ask to see consultant – even if we have tow wait, I have such a sting feeling that she is deliberately avoiding us – hope I'm wrong but will see. I also emailed Ellen so waiting…[Read more]

Thank you all for your replies. Ali your message cut off and didn't get what your mums levels were. I would be interested in kmowing what they were. Hope you mum is doing well
Love Jean x

Hi Megan thank you for that. It has eased me a bit. I will definitely get unto Maggie / ellen. I am so worried – frank seems to be so laid back about the whole thing. I'm not sure what is going on his mind. It's because of the long wait – he has had time to think and he's getting info from a registrar instead of from the boss (consultant).

I…[Read more]

BUMP

Ps Vikki good luck with BM assessment 🙂 hope it is great news
Jean. Xx

Thanks Vikki and Ann for your good thoughts. The forum will be third to know when frank gets a date, us, our sons and the friends on the forum. Best wishes to you all
Love Jean x:-D

Dear Ann

Great to hear from you and what fabulous news 4.6 million. Good on you Pete. Everything crossed for 18th. Frank has been waiting since December for a date and nothing. I'm a bit scared that he might relapse before he gets a date

My best wishes to you both
Take care
Love Jean xx

Hi Janet

It so so good to read of yourt journey. Well done you 😀 my husband is waiting for date for SCT so it is great reading positive things. Long may it continue

Love Jean x

Thanks for that Dai. You eased my mind as well. Franks. PP plateaued at 2 and is waiting to go in for SCT. I was so depressed that it did not reach 0. Feel a bit better. More info from you and a registrar than we have gotten from consultant in 6 years 🙂

Vanessa hope all goes well for Stewart. Keep us I formed – as Frank is waiting it is good…[Read more]

Hi Joe

It's very good of you to come on and let us know what you are doing. I remember you dads journey and its hard to believe that nearly a year has gone by.

From me thank you so much for what you are doing. Myeloma has to be put on the map and what you are doing will contribute greatly to that. I'm sure your dad will be with you all of…[Read more]

Congratulations Dai and Janet

I'm sure you are both over the moon – I know the feeling. Best wishes to you both and the new parents 😀

Our wee man isn't feeding so they are force feeding (!!!) him at moment so will be in Hospital till its sorted

Take care
Love Jeanx

Hi Jo Jo

Thanks. He is so lovely but his nails are so long that he has scratched the face off himself ? they have put mitts on him,, they hope to get home tomorrow but as Angela is diabetic they may keep her in a bit longer. She won't like that as she wants home so badly

Hope you are well and truly over you chest I fiction

Keep…[Read more]

Hi John

My hubby had Zometa for 2 years back in 2006. He then started it again in June and on both occasions he has had no side effects at all. Hope all goes well for your wife

Love Jean

Hi Pat and Tom

Thanks for your good wishes. Just back from hospital and they had to prise him out of my arms. They have called him Benjamin Francis (Francis after Frank). Too adorable

Pat Beatrix is a wee poppet – she is so tiny, dear love her. I'm sure you can't wait to meet her. This 'face time' is brilliant. I use it all the time to see…[Read more]

Dear Sal

So sorry that your dad has lost his battle with this horrible illness. I know it's difficult and maybe hard to hear but it is a blessing that as you say it was "short and sweet". To know that your dear dad is not suffering must be of some comfort to you. My thoughts and prayers are with you and your family

Love jean x

Hello Maureen

I am so glad to read that Ian is progressing and glad that he may walk again. Everything crossed for him. When Frank was on CTD they had to reduce the Dex as he had bad side effects. Great to hear that Ian is handling it well. My very best wishes to you both

Love Jean x