jmsmyth replied to the topic Been a bit quiet but just started Cycle 3 RCD Myeloma XI Trial in the forum General 11 years, 11 months ago
Hi Sarah Jane
Great new about the PP's. long may it continue. Sarah Jane a great Christmas and a HEALTHY happy new year
Love Jean x 🙂
jmsmyth replied to the topic Blood reap in the forum Newcomers 11 years, 11 months ago
Hi Rita
Sorry I'm like Tom I cannot help but hope someone will come along soon that will be able too. My best to your son
Love Jean x
jmsmyth replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 11 months ago
Megan good luck to Phil. Hope all goes great! 🙂
Love Jean x
jmsmyth replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 11 years, 11 months ago
Ann and Pete
Good luck for tomorrow. Everything crossed 🙂
Love Jean xx
jmsmyth replied to the topic in hospital for my sct in the forum Treatment 11 years, 11 months ago
Good luck from me Peggy. Hope all goes well
Love Jean xxxx
jmsmyth replied to the topic Happy Christmas and a HEALTHY New Year to you all in the forum Off topic 11 years, 11 months ago
From me too I wish all my friends a happy Christmas and a very healthy and happy new year. My thoughts too are with the families of all the lovely friends that we have lost this year. May 2013 bring even more positive news on MM
Merry Christmas and a HAPPY HEALTHY NEW YEAR to all
Love Jean xx
jmsmyth replied to the topic So Alone in the forum End of Life and Grief 11 years, 11 months ago
Dear Sue
I read your post on the day it went up and wanted to say something to you but was scared that I would say the wrong thing. I pray that Michaels pain is under control and that God gives you strength. I'm so glad that your neighbour came round and now you will have someone that you can talk to who is nearby.
I hope you and your family…[Read more]
jmsmyth replied to the topic HOW DO YOU REPORT ABUSE OF THIS SITE? in the forum Off topic 11 years, 11 months ago
Hi Gill
I nearly had a fit when I saw these postings this morning. Didn't know what to do about them. It is a disgrace
Gill how are you doing? iIthink about you often
Take care
Love Jean x
jmsmyth replied to the topic Is it coming back in the forum General 11 years, 11 months ago
Great news Wendy well done so uplifting to read good news
Jean x
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Hi Vicki and Colin
Good to hear from you and glad that Colin is on the right road. What terrible news about Colin's dad. It's never good to hear news like that but at Christmas it just seems so poignant. I do hope you have a brilliant Christmas. I'm a bit worried (there is no satisfying me) this is the best Frank has felt in a long time. He…[Read more]
jmsmyth replied to the topic At a low point in the forum Carers 11 years, 11 months ago
Hi Sue
Welcome from me as well. I know you don't want to be here but you will get the support and friendship that you need. Ken has had a rough ride but David is right this d**n disease is so individual. My husband smouldered for 6 year and started treatment in June. I knew about the Dex and dexitude from the postings on the forum but when…[Read more]
jmsmyth replied to the topic Bendamustine information in the forum Treatment 11 years, 11 months ago
Terry what a terrible terrible time you have had. Sorry I can't help with any info but I'm sure someone will come along who can help. Best wishes to you and loved the car 🙂
Love Jean x
jmsmyth replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 11 years, 11 months ago
Hi Ann and Pete
Frank went today for the high dose chemo and starts the injections tomorrow . We were told that there may be aches and pains in back, legs, or chest. Nurse said this is a good thing as it means marrow producing cells!! We have to go back next Wednesday early in morning and they will take blood and we have to go to canteen were…[Read more]
jmsmyth replied to the topic All Systems Go! in the forum Treatment 11 years, 11 months ago
Dai some more great news. Well done!!! Take care
Love Jean xx
jmsmyth replied to the topic 10 Months Post Transplant in the forum General 11 years, 11 months ago
Michelle that is really great news. Frank is going for harvest next Wednesday. It is so inspiring to read posts like this. Thank you and have a fantastic Christmas
Love Jean xx
jmsmyth replied to the topic REVVING UP FOR SCT! in the forum Treatment 11 years, 11 months ago
Hi Ann and Pete
Frank is 2 days behind Pete. He is due on 19th (all goes well). So I will be following your posts closely and wish Pete the best of luck in the world. Ann we were having 12 for Christmas and the registrar sad no. So we cancelled. But we don't thing she is right. We are seeing consultant before the zap of chemo starts so will…[Read more]
jmsmyth replied to the topic Very worried in the forum Side-effects 11 years, 11 months ago
Hi Emma
Like Vicki I cannot say anything that will be of help to you. But I know what you are going through and I hope you get some comfort that there are many thinking about your mum. And wishing her well. Good luck for tomorrow
Take care of yourself
Love Jean x
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Hi Vicki
Thanks for your advice. At first I was a bit uncomfortable when people visited but not now. Frank is more important. I have the poor mans head turned. He went with sons to pub to watch United. He has the hand wash, wipes and I made him take first defence before he left the house and he has it with him. And I forgot the Manuka honey -…[Read more]
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Hi Dai and Paul
Dai thank you for your post – you spoke very eloquently about Paul. I know we have lost very good friends to the this awful disease but I think it hit hard because as you say he was doing so well and was so young and just something that I never expected. I will make sure that Frank takes recovery very slowly and just pray that…[Read more]
jmsmyth replied to the topic Requesting MRIs in the forum General 11 years, 11 months ago
Hi Charlotte
I can give you Franks experience. He was diagnosed in 2006 with Smouldering MM in Sept 2006 and was monitored every 3 months. Bloods and everything were fine and the he took a pain In his side. He had it for 18 months and was sent for an MRI which didn't show up anything Pain went on and it was decided to have a PET scan (I think…[Read more]