jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Yes Helen a complete bolt from the blue. Doing the blast of Chemo on Tuesday and then injections twice a day till the following Wednesday and if all goes well they will harvest on the Wednesday. No date for the cells to be put back as we were told that Leukemia and lymphoma patients get first dibs. It was quite a shock but we are seeing consultant…[Read more]
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Helen thanks so much for the info. I am so glad that I posted my concerns on the forum as the replies, info and advice that I have had has made things so much clearer and put my mind at ease a little. I can't help but worry as my mind runs riot. The registrar had said that if he put the SCT of for a a time he may relapse andd then he would have…[Read more]
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Hi Babs thanks for that. I am trying to get things straight in my head so I can give Frank Informed information. When I think of your post it does make sense to try and keep him infection free as possible. One of our sons tell s me that I am OCD when we have visitors they are made to cleanse their hands. I will pass your info on to Frank as it…[Read more]
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Hi Megan and Ali
Thanks so much for your posts. I really appreciate the support. Don't know what I would do without the forum and all my cyber friends
Take care and thanks again
Love Jean xx
jmsmyth replied to the topic Least is best – or more is best in the forum Treatment 11 years, 11 months ago
Hi Peter
Not sure if I am thick or what. Clicked on the link and it brought me into the site but can find no link to play the recording. I am very interested to hear it as Frank is going for SCT. Any guidance how to listen
Thanks
Jean
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Hi Megan
iWeb we saw the registrar yesterday ( she wasn't the brightest tool in the box) but after she gave us the dates for chemo and harvesting she told Frank to stay away from people. Was Phil told this as well? We were talking this morning and Frank says he can't understand this as he is only having the one zap of chemo. Megan ani info…[Read more]
jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Megan, Vicki, Colin and Tom
Thank you so much for your posts I have followed SCT posts for some time but when it arrives on your door step its another story. Thanks Megan on the tip about bananas, I have started a note book. Hospital told us before harvesting for Frank to try and eat cheese and drink milk to build up calcium. My best…[Read more]
jmsmyth started the topic SCT – Franks turn. in the forum Treatment 11 years, 11 months ago
Hi all
Got a letter on Monday to say that Franks appointment was brought forward 'due to unforeseen circumstances' to today. We saw registrar and she launched into – on Tuesday you will come in for a blast of chemo- and went on rabbiting. We were confused until it was explained that chemo on Tuesday and then 2 injections a day for a week and…[Read more]
jmsmyth replied to the topic By-Passng Nature – For Jo in the forum Off topic 11 years, 11 months ago
Here here I agree with Jo Jo
Love jean xx
jmsmyth replied to the topic Vemurafenib Clinical Trial in the forum Treatment 11 years, 11 months ago
Keith good luck on Thursday I will cross everything that you get the chance to go on the trial. Keep us informed.
Take care
Love Jean x
jmsmyth replied to the topic Good news in the forum Treatment 11 years, 11 months ago
Ali what a lovely photo. You all have had a hard time so enjoy and have a great Christmas
Love Jean xx
jmsmyth replied to the topic Postcard from New Zealand in the forum Off topic 11 years, 12 months ago
Glad you arrived safely. Sounds wonderful and that's just the first day !! Have a brilliant time and post photos!!
Love Jean xx
jmsmyth replied to the topic Chest infections in the forum Side-effects 12 years ago
Sarah
I can understand your frustration and anger with unprofessional "professionals". I hope that they get Henry's infection sorted soon. Frank was so illl last week and was told "we don't want you here if you are infectious". We had no idea if he was or what was causing it. I hope tomorrow that there is a great improvement in Henry and that…[Read more]
jmsmyth replied to the topic Chest infections in the forum Side-effects 12 years ago
Hi Sarah and Henry
So sorry to hear that Henry is having such a rough ride. I cannot offer any advice but just thought that I would let you know that I'm thinking of you both and hope Henry starts to feel better soon.
Take care
Love Jean xx
jmsmyth replied to the topic Calling David in the forum Off topic 12 years ago
Sounds brilliant David and the photo is great. You are having "a royal" anniversary 😎 and why not Much rather have the champagne than the Guiness. Enjoy. And many ore happy years
Love Jean x
jmsmyth started the topic Calling David. in the forum Off topic 12 years ago
Hi David and Mo
Just called in to wish you both a happy happy anniversary. Have a brilliant day and a great time with the family 🙂 🙂 🙂
Live Jean. Xx
jmsmyth replied to the topic Charity night in the forum General 12 years ago
Hi Andy
So glad you enjoyed yourself. That's a great amount of money. Well done to all concerned. It is good to hear that you are having a good week – long may it continue 😀
Take care
Love Jean xx
jmsmyth started the topic Calling Eve. in the forum Off topic 12 years ago
Hi Eve
Hope I haven't missed you, that you haven't left for New Zealand (??). Just want to say have a brilliant time. Enjoy every minute and take lots of photos. Best wishes to Slim. Have a safe journey
Love Jean x
Will you still be able to play scrabble with me :-S
jmsmyth replied to the topic Feeling sick in the forum Side-effects 12 years ago
Hi Keith
Thanks for that. Will remember but Frank hasn't started SCT yet, he's waiting for a date. He has just finished the CTD. He is really feeling rough
Keith hope your treatment works for you. Thinking of you
Love Jean x
jmsmyth started the topic Feeling sick. in the forum Side-effects 12 years ago
Hi all
Frank finished CDT on Thursday and for 3 days he said that he was beginning to feel human again. For the past 2 days he has been feeling so sick – has not actually been sick but just feeling so nausea. Not sure if I had read about sickness after treatment or if it was after SCT. Does anyone have any knowledge of this?
Thanks
Love Jean x