JeanSmyth

  • jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago

    Yes Helen a complete bolt from the blue. Doing the blast of Chemo on Tuesday and then injections twice a day till the following Wednesday and if all goes well they will harvest on the Wednesday. No date for the cells to be put back as we were told that Leukemia and lymphoma patients get first dibs. It was quite a shock but we are seeing consultant…[Read more]

  • jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago

    Helen thanks so much for the info. I am so glad that I posted my concerns on the forum as the replies, info and advice that I have had has made things so much clearer and put my mind at ease a little. I can't help but worry as my mind runs riot. The registrar had said that if he put the SCT of for a a time he may relapse andd then he would have…[Read more]

  • jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago

    Hi Babs thanks for that. I am trying to get things straight in my head so I can give Frank Informed information. When I think of your post it does make sense to try and keep him infection free as possible. One of our sons tell s me that I am OCD when we have visitors they are made to cleanse their hands. I will pass your info on to Frank as it…[Read more]

  • jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago

    Hi Megan and Ali

    Thanks so much for your posts. I really appreciate the support. Don't know what I would do without the forum and all my cyber friends

    Take care and thanks again
    Love Jean xx

  • Hi Peter

    Not sure if I am thick or what. Clicked on the link and it brought me into the site but can find no link to play the recording. I am very interested to hear it as Frank is going for SCT. Any guidance how to listen

    Thanks
    Jean

  • jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago

    Hi Megan

    iWeb we saw the registrar yesterday ( she wasn't the brightest tool in the box) but after she gave us the dates for chemo and harvesting she told Frank to stay away from people. Was Phil told this as well? We were talking this morning and Frank says he can't understand this as he is only having the one zap of chemo. Megan ani info…[Read more]

  • jmsmyth replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago

    Megan, Vicki, Colin and Tom

    Thank you so much for your posts I have followed SCT posts for some time but when it arrives on your door step its another story. Thanks Megan on the tip about bananas, I have started a note book. Hospital told us before harvesting for Frank to try and eat cheese and drink milk to build up calcium. My best…[Read more]

  • Hi all

    Got a letter on Monday to say that Franks appointment was brought forward 'due to unforeseen circumstances' to today. We saw registrar and she launched into – on Tuesday you will come in for a blast of chemo- and went on rabbiting. We were confused until it was explained that chemo on Tuesday and then 2 injections a day for a week and…[Read more]

  • Here here I agree with Jo Jo
    Love jean xx

  • Keith good luck on Thursday I will cross everything that you get the chance to go on the trial. Keep us informed.

    Take care
    Love Jean x

  • jmsmyth replied to the topic Good news in the forum Treatment 11 years, 11 months ago

    Ali what a lovely photo. You all have had a hard time so enjoy and have a great Christmas
    Love Jean xx

  • Glad you arrived safely. Sounds wonderful and that's just the first day !! Have a brilliant time and post photos!!

    Love Jean xx

  • jmsmyth replied to the topic Chest infections in the forum Side-effects 12 years ago

    Sarah

    I can understand your frustration and anger with unprofessional "professionals". I hope that they get Henry's infection sorted soon. Frank was so illl last week and was told "we don't want you here if you are infectious". We had no idea if he was or what was causing it. I hope tomorrow that there is a great improvement in Henry and that…[Read more]

  • jmsmyth replied to the topic Chest infections in the forum Side-effects 12 years ago

    Hi Sarah and Henry

    So sorry to hear that Henry is having such a rough ride. I cannot offer any advice but just thought that I would let you know that I'm thinking of you both and hope Henry starts to feel better soon.

    Take care
    Love Jean xx

  • jmsmyth replied to the topic Calling David in the forum Off topic 12 years ago

    Sounds brilliant David and the photo is great. You are having "a royal" anniversary 😎 and why not Much rather have the champagne than the Guiness. Enjoy. And many ore happy years

    Love Jean x

  • jmsmyth started the topic Calling David. in the forum Off topic 12 years ago

    Hi David and Mo

    Just called in to wish you both a happy happy anniversary. Have a brilliant day and a great time with the family 🙂 🙂 🙂

    Live Jean. Xx

  • jmsmyth replied to the topic Charity night in the forum General 12 years ago

    Hi Andy
    So glad you enjoyed yourself. That's a great amount of money. Well done to all concerned. It is good to hear that you are having a good week – long may it continue 😀

    Take care
    Love Jean xx

  • jmsmyth started the topic Calling Eve. in the forum Off topic 12 years ago

    Hi Eve

    Hope I haven't missed you, that you haven't left for New Zealand (??). Just want to say have a brilliant time. Enjoy every minute and take lots of photos. Best wishes to Slim. Have a safe journey

    Love Jean x

    Will you still be able to play scrabble with me :-S

  • jmsmyth replied to the topic Feeling sick in the forum Side-effects 12 years ago

    Hi Keith

    Thanks for that. Will remember but Frank hasn't started SCT yet, he's waiting for a date. He has just finished the CTD. He is really feeling rough

    Keith hope your treatment works for you. Thinking of you

    Love Jean x

  • jmsmyth started the topic Feeling sick. in the forum Side-effects 12 years ago

    Hi all

    Frank finished CDT on Thursday and for 3 days he said that he was beginning to feel human again. For the past 2 days he has been feeling so sick – has not actually been sick but just feeling so nausea. Not sure if I had read about sickness after treatment or if it was after SCT. Does anyone have any knowledge of this?

    Thanks
    Love Jean x

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