Hope treatment works Keith. Kick this bu**er into touch. Thinking of you

Love Jean x

Good news Phil keep improving!!
Take care
Love Jean x

Wendy a very moving post.

Love Jean x

Hi Ali

I have been following your mums journey and over the moon to read your news. Long my the remission continue and I hope your mum enjoys every minute. It's also been hard on you so hope you can relax a bit and take it easy.

Love Jean x

Hi Deirdre

Sorry thatmyou are now part of our club, but welcome from me. My hubby was diagnosed 6 years ago with smouldering MM no treatment only Zometa which he had for a year. June this year he started CDT and has just finished and is waiting for date for SCT and he has started Zometa again. Deirdre if you phone MMUK (no at top) and ask they…[Read more]

Hi Kes and welcome from me to. This is the best place for you to be. We are all a friendly lot and there is a mindful of I formation, advice and friendship here. It is hard coming to terms with Mm. My hubby was diagnosed 6 years ago with smouldering MM and started CDT in June and has just finished his last cycle and waiting for date for SCT.…[Read more]

Hi Babs

You certainly have had a terrible time. But as you have read a out Slims journey you will,know that there is light at the end of the tunnel. Slim had a hard struggle but look at him and Eve now gallivanting all over the place – and New Zealand no less!!! So as Eve says book you Australia trip (when you get consultants permission) then…[Read more]

Chris great news you are going home and that you are feeling good. I'm sure Lena is over the moon as well. Take it easy and take care

Love Jean

Hi Babs

Sory you had to join us but welcome. It is such a shame that you have only just found the site as this is a great place for support,advice and friendship. I hate the word carer, but I am carer to my hubby Frank. We are just waiting for a date for his SCT. How was yours are you in remission? Although I have been a member of the forum…[Read more]

Hi Keith

I cannot answer any of your questions or give advice on Trials but just wanted you to know tha tI am thinking of you and hoping all goes well for you tomorrow and you get your questions answered

Love Jean x

Hey Helen

I thought the pesky cough had cleared up. Hope it goes soon. I know the whooping cough does last some time but you have had it long enough. It's time it takes a hike!!

Take care
Love Jean x

Hi Debbie

My husband was like Wendy. He's coming to the end of 6th cycle of CDT and for abouT 4 days after coming of Dex he was very shakey and could not drive. As to going on holiday while on treatment I would say it would have to be cleared by consultant but with Franks experience – out of the 6 months we had to go to the hospital on 5…[Read more]

Mavis what brilliant news to read. I am so happy for you. It's so great to read positive posting like this. Paul's passing was so tragic and such a shock. You will be in my prayers for a long happy remission. Enjoy every minute 🙂

Love and best wishes
Jean xx

Thanks Nicola and I'm glad to hear that your dads legs are back to normal. All these horrible side effects are such a worry. No sooner get over one and another rears it's ugly head We are off to see the consultant tomorrow. I really hope that this is the turning point for your dad and he goes from strength to strength

Best wishes to your…[Read more]

Swollen fete have disappeared!!!!! Back to normal. I think it was the d**m steroids that was the cause. But just thankful l that they are both normal. Thanks all for advice and tips

Love jean x

Hi Polly

I agree with Eve. If it is possible to go home and go back. Franks drugs are ordered roundabout 11.00am and they are not ready till 4.30pm. We are fortunate that we live about 20 mins from hospital. One thing I will say is check the drugs yourself before you leave. Frank is just finishing 6th cycle and the drugs were never right. For…[Read more]

Hello,Dai, thank you for the information, you went through the wars. . Frank has been on Clexane for the past 6 months. He is still,sleeping do not sure how he is now but yesterday the swelling in both legs had come down a bit. When we went to the Unit on Friday they seemed more interested in his low temperature. Saying that they did give him a…[Read more]

Hi Nettie I was asking Tom the same thing. Hope all is ok with him

Love Jean x

Hi Mary

Frank takes the chemo every Monday. He feels off all day Monday but by late Tuesday he is feeling better. It is the Dex that he suffers from. The dose was cut in half but it still takes it out of him. When he's on the Dex he doesn't leave the house for about a week – the chemo – about 36 hours. As you know everyone rects differently.…[Read more]

Vicki I was just thinking about you and Colin this morning. Hope all goes well. Best to Colin. Keep us informed when you can. Hope Frank will be having his soon – 😉 everything crossed
Love Jean xx