Hi Mary i'm so sorry that Charlie is having such a terrible time and wish him a a quick recovery. I used to say "the light at the end of the tunnel is another blo**y train coming. But it's not its a light. Come on rant, rave and scream if you want , most of us have been there. As Vicki says take care if yourself

My best to you both
Love Jean…

Nicola Sorry about that txt – this predictive text can be a curse. After I re read it I wondered how you could understand it!!! Frank at last is feeling good. He even made breakfast this morning. Takes the chemo on Monday and he feels bad for about 18 hours. He was taking them in the morning but changed to take them at night so he could sleep…[Read more]

Hi Ann. It could be medication as everyone seems to have different side affects but every time we go to see consultant I always bring it up as its always better to be safe than sorry. I'm sure consultant is sick of hearing the same thing but I just want to be reassured.

Frank is scheduled for SCT December/January bur there is only one hospital…[Read more]

Hi Ann

Sorry Pete having problem. Frank is on cycle 5 of CDT. He has had sligntly (!!!) numb fingers the whole way through treatment. Consultant doesn't seem to be concerned. He had to go two weeks for heart tests and last week for lung tests. This we are toldi s to ensure heart and lungs ok for SCT.

Maybe someone else will have more…[Read more]

Hi Vicki and Colin

Hope you have a fantastic weekend and that next weekend you are both very busy

My love and prayers are with you both
Love Jean xx

Hi Nicola

Frank takes Dex on the Friday and finishes on Monday. He feels terrible when taking it but its when he stops that he feels so bad. Everyone is different – Keith feels unwell for 2-3 days, Franks stopped on Monday and its just today that he says he feels human again. While withdrawing from Dex he feels wobbly, and has to be careful…[Read more]

Hi Nicola

Sorry your dad is having such a hard time with the Dex. My hubby is on 5th cycle and was having such a bad time that the consultant halved the dose. It seemed to help a bit. I know it's hard, but I think it's Dai that says "whatever it takes". Hope your dad starts to feel better soon

Take care
Love Jean xx

Hi Mike

My husband was diagnosed with SMM in Sept 2006. Straight away consultant started him on Zometa once a month for 2 years. She then stopped it. Years later I asked her if Frank would go back on it and she said that as he was still smouldering he would not have it as thinking had changed about giving it to SMM patients. He is now back on…[Read more]

Hi Mari

Poor Steve is having a rough ride. I hope things start to improve soon. It must be awful for you watching him go through this. Try and keep your spirits up. Will be thinking of you both
Love Jean x

Hi Andy and Steph

Just what the doctor ordered. Hope you have a brilliant time – you both deserve it
Love Jean x

Sarah what brilliant news! It is so heartening to read posts like this. Long may the remission last. He has had a rough road and Henry as they say here in Norn Iron )northern Ireland to people on the mainland ) "good on ye"

Love Jean x

Lovely Min. Thank you
Jean

Hi Sarah Jane

Sorry you have had to join us but you are in the right place. My husband had SMM for 6 years and has just started treatment June. It is a roller coaster journey and I know where you are coming from about getting tested. Frank went every 3 months and for most of that I was able to put it to the back of my mind and get on with our…[Read more]

Hi Vikki and Colin so glad to hear that Colin is getting plexifor (!!) I am following your journey closely as Frank is a couple of months behind Colin. Do keep us posted every step (if you are up to it) it is so helpful to read of other peoples experiences

Love, best wishes and all the luck in the world
Love Jean x

Dear Gill

I am so so sorry to hear that Stephen has gone. My deepest sympathy and love goes to you and your family. I don't know any words that will comfort you at this terrible time. I have followed Stephen journey through this awful disease and was with you in his ups and downs. Gill I wish you strength and the love of your family to get you…[Read more]

Dear Gill
I like everyone else is devastated for what you and Stephen are going through. My thoughts are with you bothe. God bless

Love jean xx

Hey Tom there were two lots of spam this morning – oh boy I'm on the ball!! When I read it I had no idea what to do about it.
Love Jean x

Tina I wish you all the luck in the world. Hope it all goes well. 🙂

Live jean xx